Parental and adolescent perceptions of clinical trial participation: the FUEL randomised controlled trial and open-label extension study
Perceptions of research were positive and slightly better for parents. Study teams and compensation were key contributors to positive perceptions. Study burden and testing were viewed less favourably. Future studies should consider families' preferences and potential barriers to participation.
Authors
- Martha Rolland
- Linda M. Lambert (ORCID: https://orcid.org/0000-0002-8572-9874)
- Mary Stumpf
- Olukayode Garuba
- Frances Woodard
- Kathleen Rathge
- Victoria L. Pemberton (ORCID: https://orcid.org/0000-0001-5610-9070)
- Thomas Giorgio
- Russell Gongwer (ORCID: https://orcid.org/0000-0002-9344-9303)
- Stacy Woyciechowski
- Jennifer S. Yauck
- Felicia Trachtenberg
- Cynthia Smith
- Sandra Mihelic
Institutions
- Children's Hospital of Wisconsin (US)
- Cincinnati Children's Hospital Medical Center (US)
- Boston Children's Hospital (US)
- Children's Hospital of Philadelphia (US)
- Children's National (US)
- Medical University of South Carolina (US)
- Baylor College of Medicine (US)
- University of Toronto (CA)
- University of Utah (US)
- Hospital for Sick Children (CA)
- Riley Hospital for Children (US)
- National Heart, Lung, and Blood Institute (US)
- 480 Biomedical (United States) (US)
- SickKids Foundation (CA)
- Texas Children's Hospital (US)
- C. S. Mott Children's Hospital (US)
Publication Details
- Journal
- Cardiology in the Young
- Published
- 2025-05-20
- DOI
- https://doi.org/10.1017/s1047951125001702
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00