Time to prioritise the use of participatory research methods for people with intellectual disabilities

People with intellectual disability experience significant health inequality, and consequently poor health outcomes. Although research can facilitate change, there is a risk of researchers propagating inequity by selecting methods that exclude people with some forms of intellectual disability. We argue for participatory research methods that enable inclusion.

Authors

Institutions

Publication Details

Journal
The British Journal of Psychiatry
Published
2025-05-20
DOI
https://doi.org/10.1192/bjp.2025.96
Citations
3
Primary Topic
Down syndrome and intellectual disability research
Type
article
Field-Weighted Citation Impact
5.64

Funders

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article

Time to prioritise the use of participatory research methods for people with intellectual disabilities

Stefan Rennick‐Egglestone, Olamide Todowede, Madiha Majid, Gerald Jordan et al.
3 citations
The British Journal of Psychiatry
Down syndrome and intellectual disability research
5.64
article

Time to prioritise the use of participatory research methods for people with intellectual disabilities

Stefan Rennick‐Egglestone, Olamide Todowede, Madiha Majid, Gerald Jordan, Ashok Roy
article en
3 citations

Abstract

People with intellectual disability experience significant health inequality, and consequently poor health outcomes. Although research can facilitate change, there is a risk of researchers propagating inequity by selecting methods that exclude people with some forms of intellectual disability. We argue for participatory research methods that enable inclusion.

The British Journal of PsychiatryVol. 228(2)
Birmingham City University (GB), University of Nottingham (GB), Centre for Mental Health (GB), Institute of Mental Health (GB), Coventry and Warwickshire Partnership NHS Trust (GB), Nottingham Biomedical Research Centre (GB)
Wellcome Trust, UK Research and Innovation, National Institute for Health and Care Research, NIHR Nottingham Biomedical Research Centre
Reduced inequalities
Openalex Percentile: Top 4%
Down syndrome and intellectual disability research
5.64
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Time to prioritise the use of participatory research methods for people with intellectual disabilities — Stefan Rennick‐Egglestone, Olamide Todowede, et al. · The British Journal of Psychiatry (2025) | TGRS Research Map | TGRS