Patient experience with pulmonary hypertension in Spain
Patient support programs are essential for improving disease management and the quality of life of patients with PAH. However, the findings highlight a gap in access to emotional and educational support within the healthcare system.
Authors
- José Joaquín Mira (ORCID: https://orcid.org/0000-0001-6497-083X)
- Diego José Rodríguez Torres (ORCID: https://orcid.org/0000-0002-5678-6810)
- Manel Santiñà (ORCID: https://orcid.org/0000-0002-1161-162X)
Institutions
- Universitat de Miguel Hernández d'Elx (ES)
- University of Alicante (ES)
- Hospital Universitari Sant Joan D'Alacant (ES)
- Sociedad Española de Nefrología (ES)
- Sociedad Española de Cardiología (ES)
- Consorci Institut D'Investigacions Biomediques August Pi I Sunyer (ES)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2025-05-20
- DOI
- https://doi.org/10.1186/s13023-025-03752-x
- Primary Topic
- Pulmonary Hypertension Research and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Grupo Ferrer Internacional, S.A