Time for a New Norm: Experiences of ‘Being Informed’ and ‘Having Choice’ for Prenatal Screening for Chromosomal Conditions: A Qualitative Study
The interview questions were reviewed through group discussion with eight people who had lived experiences of prenatal screening for chromosomal conditions. The research was also informed by a researcher who had no lived experience of the screening service as a counter-view. The premise of this study is to highlight how women and pregnant people experience the consenting process for prenatal screening. The findings may inform organisations, researchers and practitioners about developing approaches for better enabling informed choice in future practice.
Authors
- Sara K. Filoche (ORCID: https://orcid.org/0000-0002-0874-6494)
- Sondra Bacharach (ORCID: https://orcid.org/0000-0002-6001-2922)
- Jeanne Snelling (ORCID: https://orcid.org/0000-0002-5920-9031)
- Christina M. Buchanan (ORCID: https://orcid.org/0000-0002-6482-3474)
- Peter Stone (ORCID: https://orcid.org/0000-0003-1546-752X)
- Fiona Cram (ORCID: https://orcid.org/0000-0002-6047-8853)
- Kevin Dew (ORCID: https://orcid.org/0000-0003-3159-0413)
- Niamh Ireland‐Blake
Institutions
- University of Auckland (NZ)
- Auckland City Hospital (NZ)
- Victoria University of Wellington (NZ)
- University of Otago (NZ)
Publication Details
- Journal
- Health Expectations
- Published
- 2025-05-19
- DOI
- https://doi.org/10.1111/hex.70292
- Primary Topic
- Patient-Provider Communication in Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- University of Otago