A perioperative nursing care protocol for patients with spinal muscular atrophy (SMA) type II or type III undergoing spinal surgery: a 4-year experience in 24 patients
We implemented an SMA-specific perioperative nursing care protocol, including a respiratory care protocol and a postoperative three-step all-involved training protocol of postural adaptation, complementing standard nursing care. Our approach yielded positive patient outcomes, while we acknowledge the limitation that our protocol is pending comparative evaluations due to the rarity of the disease. The protocol was initially designed for patients with SMA but may also be suitable for other patients with profound muscle weakness.
Authors
- Di Liu (ORCID: https://orcid.org/0000-0002-5803-7223)
- Nan Wu (ORCID: https://orcid.org/0000-0002-9429-2889)
- Gaoyang Li (ORCID: https://orcid.org/0009-0008-9702-3044)
- Yaping Chen (ORCID: https://orcid.org/0000-0002-7502-1848)
- Kexin Xu (ORCID: https://orcid.org/0009-0008-7644-8174)
- Jianguo Zhang (ORCID: https://orcid.org/0000-0003-3129-5190)
Institutions
- Chinese Academy of Medical Sciences & Peking Union Medical College (CN)
- Peking Union Medical College Hospital (CN)
- Beijing Institute of Big Data Research (CN)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2025-05-19
- DOI
- https://doi.org/10.1186/s13023-025-03718-z
- Citations
- 1
- Primary Topic
- Neurogenetic and Muscular Disorders Research
- Type
- article
- Field-Weighted Citation Impact
- 1.63
Funders
- Chinese Academy of Medical Sciences
- Peking Union Medical College Hospital