Roll-Out of the NFDI4health Local Data Hubs for Medical Research Data Management

The NFDI4Health (National Research Data Infrastructure for Personal Health Data) develops Local Data Hubs (LDHs), which allow data-holding organizations to use both a research data management platform and a connection to the central study registers of NFDI4Health. We describe our approach to rolling out a broad test of the LDH for different DHO types - from university clinics to clinical trial centers. The aim is to exchange the NFDI4Health standardized study metadata and to promote the idea of data sharing in general. We report on the application process and the first results with this approach.

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Publication Details

Journal
Studies in health technology and informatics
Published
2025-05-15
DOI
https://doi.org/10.3233/shti250461
Primary Topic
Scientific Computing and Data Management
Type
article
Field-Weighted Citation Impact
0.00

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article

Roll-Out of the NFDI4health Local Data Hubs for Medical Research Data Management

Martin Golebiewski, Frank Meineke, Matthias Löbe, Xiaoming Hu
Studies in health technology and informatics
Scientific Computing and Data Management
article

Roll-Out of the NFDI4health Local Data Hubs for Medical Research Data Management

Martin Golebiewski, Frank Meineke, Matthias Löbe, Xiaoming Hu
article en

Abstract

The NFDI4Health (National Research Data Infrastructure for Personal Health Data) develops Local Data Hubs (LDHs), which allow data-holding organizations to use both a research data management platform and a connection to the central study registers of NFDI4Health. We describe our approach to rolling out a broad test of the LDH for different DHO types - from university clinics to clinical trial centers. The aim is to exchange the NFDI4Health standardized study metadata and to promote the idea of data sharing in general. We report on the application process and the first results with this approach.

Studies in health technology and informaticsVol. 327
Heidelberg Institute for Theoretical Studies (DE), Leipzig University (DE)
Deutsche Forschungsgemeinschaft
Openalex Percentile: Top 73%
Scientific Computing and Data Management
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