Building a Research Infrastructure with REDCap and FHIR

At the university hospital of Giessen since 2018 a research infrastructure has been implemented as part of the German Medical Informatics Initiative. A central FHIR repository acts as the core part of this architecture where clinical data from various subsystems is consolidated. In the past, research projects were connected via FHIR or research databases like i2b2 or OMOP to this core dataset. REDCap was added as an electronic data capture platform especially for local research projects that need to combine data entry together with the available dataset on the central FHIR repository. Meanwhile this infrastructure has been successfully used within 3 research projects in internal medicine and psychosomatic medicine.

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Publication Details

Journal
Studies in health technology and informatics
Published
2025-05-15
DOI
https://doi.org/10.3233/shti250457
Primary Topic
Research Data Management Practices
Type
article
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article

Building a Research Infrastructure with REDCap and FHIR

Johannes Beck, Romina Blasini, Kurt Marquardt, Achim Michel-Backofen
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Studies in health technology and informatics
Research Data Management Practices
article

Building a Research Infrastructure with REDCap and FHIR

Johannes Beck, Romina Blasini, Kurt Marquardt, Achim Michel-Backofen
article en

Abstract

At the university hospital of Giessen since 2018 a research infrastructure has been implemented as part of the German Medical Informatics Initiative. A central FHIR repository acts as the core part of this architecture where clinical data from various subsystems is consolidated. In the past, research projects were connected via FHIR or research databases like i2b2 or OMOP to this core dataset. REDCap was added as an electronic data capture platform especially for local research projects that need to combine data entry together with the available dataset on the central FHIR repository. Meanwhile this infrastructure has been successfully used within 3 research projects in internal medicine and psychosomatic medicine.

Studies in health technology and informaticsVol. 327
Justus-Liebig-Universität Gießen (DE)
Industry, innovation and infrastructure
Openalex Percentile: Top 74%
Research Data Management Practices
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