PanCareSurPass Project in Germany: Local Developments for the Multi-Country Implementation Study of SurPass v2.0 at a Single Center in Germany
The implementation of standardized long-term follow-up care for childhood cancer survivors is crucial for ensuring their well-being. In this paper, we focus on the integration of the Survivorship Passport into the German healthcare system, particularly through collaboration between the University Hospital Schleswig-Holstein and the German Childhood Cancer Registry. The SurPass aims to provide comprehensive treatment summaries and personalized care plans based on international guidelines. Using the PanCareSurPass project framework, we developed a method for mapping data from a clinical trial management system to the projects profile, facilitating the creation of necessary FHIR resources. Through an Extract, Transform, Load process and validation, patient data is transferred to the Survivorship Passportplatform. Our results demonstrate successful data flow from demographic, diagnostic, and treatment sources to the platform.
Authors
- Diana Walz
- Anna‐Liesa Filbert (ORCID: https://orcid.org/0000-0002-3841-5063)
- Giorgio Cangioli (ORCID: https://orcid.org/0000-0003-1918-376X)
- Judith Gebauer (ORCID: https://orcid.org/0000-0003-4428-8010)
- Riccardo Haupt (ORCID: https://orcid.org/0000-0003-0571-8460)
- Ann-Kristin Kock-Schoppenhauer (ORCID: https://orcid.org/0000-0001-6685-4429)
- Ludwig Knorr
- Jan Schladetzky
- Anke Neumann (ORCID: https://orcid.org/0000-0002-6697-8023)
- Franziska Richter (ORCID: https://orcid.org/0000-0003-0803-4398)
- Davide Saraceno (ORCID: https://orcid.org/0009-0006-4886-5128)
- Josef Ingenerf (ORCID: https://orcid.org/0000-0002-3274-8422)
- Thorsten Langer (ORCID: https://orcid.org/0000-0003-1756-4307)
- D Grabow (ORCID: https://orcid.org/0000-0002-7526-5738)
- Timm Lilienthal
- Andrea Csipak
Institutions
- Johannes Gutenberg University Mainz (DE)
- Istituto Giannina Gaslini (IT)
- University Medical Center of the Johannes Gutenberg University Mainz (DE)
- Health Level Seven International (BE)
- University Hospital Schleswig-Holstein (DE)
- Cineca (IT)
- Consorzio Interuniversitario Nazionale per l'Informatica (IT)
- Istituti di Ricovero e Cura a Carattere Scientifico (IT)
- University of Lübeck (DE)
Publication Details
- Journal
- Studies in health technology and informatics
- Published
- 2025-05-15
- DOI
- https://doi.org/10.3233/shti250506
- Primary Topic
- Cancer Genomics and Diagnostics
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- European Commission