Are Adolescents Sensitive About Sensitive Data? Exploring Student Concerns About Privacy, Confidentiality, and Data Use in Health Research
Concerns about privacy, confidentiality, and data use were common amongst student participants, as were self-reported inaccuracies. Substantial differences in nonresponse and score distributions on sensitive measures highlight potential impacts of these concerns. Co-designing and implementing strategies to address these concerns might help to support evidence-based decision-making by improving representativeness and data quality in adolescent health research.
Authors
- Mina S. Fazel (ORCID: https://orcid.org/0000-0001-9342-2365)
- Emma Soneson (ORCID: https://orcid.org/0000-0003-1666-3012)
- Simon Richard White (ORCID: https://orcid.org/0000-0001-8642-7037)
- Puneetha S Goli
Institutions
- University of Oxford (GB)
- Southwestern Medical Center (US)
- MRC Biostatistics Unit (GB)
- Science Oxford (GB)
- The University of Texas Southwestern Medical Center (US)
Publication Details
- Journal
- Journal of Adolescent Health
- Published
- 2025-05-14
- DOI
- https://doi.org/10.1016/j.jadohealth.2025.03.004
- Citations
- 5
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 9.39
Funders
- National Institute for Health and Care Research
- Department of Health and Social Care