What Patients Don’t Say and Physicians Don’t Ask: A Needs Assessment in Myasthenia Gravis Integrating Patient and Healthcare Professional Perspectives
This needs assessment indicated general alignment between patients and HCPs on MG symptoms; however, notable disparities were found in relation to the perceived impact of these symptoms on patients' lives, and communication. While some HCPs expected patients to volunteer information on symptoms and MG-related challenges, patients expected their HCPs to ask. This highlights a need for improved communication strategies, which will foster SDM approaches.
Authors
- Alexis Rodriguez
- Nicholas J. Silvestri (ORCID: https://orcid.org/0000-0001-7931-0930)
- Channa Hewamadduma
- Ashwin Pinto (ORCID: https://orcid.org/0000-0002-5649-9600)
- Ivo Vlaev (ORCID: https://orcid.org/0000-0002-3218-0144)
- Sophie Lehnerer (ORCID: https://orcid.org/0000-0001-9007-027X)
- Sheila Barry
- Ina Weisshardt
- Allison Foss
- John Vissing
- Marc De Backer
- C. Acosta (ORCID: https://orcid.org/0000-0002-4079-5560)
- Natasha Monin
Institutions
- University College Dublin (IE)
- University of Copenhagen (DK)
- Georgia Department of Education (US)
- Amyotrophic Lateral Sclerosis Association (US)
- Copenhagen University Hospital (DK)
- Rigshospitalet (DK)
- University of Warwick (GB)
- Sheffield Teaching Hospitals NHS Foundation Trust (GB)
- Reaction Biology Corporation (United States) (US)
- Maschinenfabrik Reinhausen (Germany) (DE)
- Kerntechnische Entsorgung Karlsruhe (Germany) (DE)
- University of Southampton (GB)
- University at Buffalo, State University of New York (US)
- Charité - Universitätsmedizin Berlin (DE)
- UCB Pharma (Belgium) (BE)
- University of Sheffield (GB)
Publication Details
- Journal
- Neurology and Therapy
- Published
- 2025-05-15
- DOI
- https://doi.org/10.1007/s40120-025-00751-9
- Citations
- 2
- Primary Topic
- Myasthenia Gravis and Thymoma
- Type
- article
- Field-Weighted Citation Impact
- 2.78
Funders
- UCB