Risks and benefits of engaging youth living with HIV in research: perspectives from Kenyan Youth, caregivers, and subject matter experts
These findings suggest that participants commonly cite indirect risks and benefits of research participation, yet these are often excluded from institutional guidelines for consent documentation. Researchers should consider including indirect risks and benefits, such as the risk of stigma or the benefit of gaining knowledge and community, to study documentation.
Authors
- Josephine Aluoch (ORCID: https://orcid.org/0000-0003-2174-2006)
- Rami Kantor (ORCID: https://orcid.org/0000-0003-3659-1108)
- Michael Scanlon (ORCID: https://orcid.org/0000-0002-0334-5640)
- Whitney Biegon
- Allison DeLong (ORCID: https://orcid.org/0000-0001-8660-8073)
- Rachel Vreeman (ORCID: https://orcid.org/0000-0001-5460-8204)
- Jack Nyagaya
- Winstone Nyandiko
- Ashley Chory (ORCID: https://orcid.org/0000-0002-3551-5341)
- Celestine Ashimosi (ORCID: https://orcid.org/0000-0002-1102-1400)
- Emma Gillette (ORCID: https://orcid.org/0000-0003-2719-5138)
- Dennis Munyoro
- Hillary Koros (ORCID: https://orcid.org/0000-0003-0888-8174)
- Violet Naanyu (ORCID: https://orcid.org/0000-0003-0182-1719)
- Janet Lidweye
Institutions
- Indiana University Health (US)
- Moi University (KE)
- Brown University (US)
- Center for Global Health (US)
- AMPATH (KE)
- Indiana University – Purdue University Indianapolis (US)
- Icahn School of Medicine at Mount Sinai (US)
Publication Details
- Journal
- BMC Medical Ethics
- Published
- 2025-05-16
- DOI
- https://doi.org/10.1186/s12910-025-01225-1
- Citations
- 2
- Primary Topic
- HIV/AIDS Research and Interventions
- Type
- article
- Field-Weighted Citation Impact
- 2.79
Funders
- National Institutes of Health