Toward a person-centered return of research results of dementia risk: A pluralistic, constructive expansion
Graham et al.'s article offers a thoughtful account of why disclosing modifiable dementia risk factors to cognitively unimpaired research participants may be ethically defensible. In this Ethics Response, we seek to engage constructively with their arguments, affirming value in a person-centered approach, while also expanding on how cultural, communal, and religious contexts can further illuminate the ethics of returning individual research results. Drawing on emerging ethical issues and examples from diverse settings, this response highlights how stigmatization, religious worldviews, family care traditions, and broader socioeconomic factors may influence the perceived meaning and impact of dementia risk communication.
Authors
- Eve J. Wiseman
- J. Wesley Boyd (ORCID: https://orcid.org/0000-0002-3801-1114)
- Bilal Irfan (ORCID: https://orcid.org/0009-0005-5822-7528)
- Annalise Rahman‐Filipiak (ORCID: https://orcid.org/0000-0001-6711-6356)
- Jon Reader (ORCID: https://orcid.org/0000-0003-3528-2207)
Institutions
- Brigham and Women's Hospital (US)
- Harvard University (US)
- University of Michigan (US)
Publication Details
- Journal
- Journal of Alzheimer s Disease
- Published
- 2025-05-14
- DOI
- https://doi.org/10.1177/13872877251343319
- Citations
- 3
- Primary Topic
- Grief, Bereavement, and Mental Health
- Type
- article
- Field-Weighted Citation Impact
- 6.92