Toward a person-centered return of research results of dementia risk: A pluralistic, constructive expansion

Graham et al.'s article offers a thoughtful account of why disclosing modifiable dementia risk factors to cognitively unimpaired research participants may be ethically defensible. In this Ethics Response, we seek to engage constructively with their arguments, affirming value in a person-centered approach, while also expanding on how cultural, communal, and religious contexts can further illuminate the ethics of returning individual research results. Drawing on emerging ethical issues and examples from diverse settings, this response highlights how stigmatization, religious worldviews, family care traditions, and broader socioeconomic factors may influence the perceived meaning and impact of dementia risk communication.

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Publication Details

Journal
Journal of Alzheimer s Disease
Published
2025-05-14
DOI
https://doi.org/10.1177/13872877251343319
Citations
3
Primary Topic
Grief, Bereavement, and Mental Health
Type
article
Field-Weighted Citation Impact
6.92
Controls
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article

Toward a person-centered return of research results of dementia risk: A pluralistic, constructive expansion

Eve J. Wiseman, J. Wesley Boyd, Bilal Irfan, Annalise Rahman‐Filipiak et al.
3 citations
Journal of Alzheimer s Disease
Grief, Bereavement, and Mental Health
6.92
article

Toward a person-centered return of research results of dementia risk: A pluralistic, constructive expansion

Eve J. Wiseman, J. Wesley Boyd, Bilal Irfan, Annalise Rahman‐Filipiak, Jon Reader
article en
3 citations

Abstract

Graham et al.'s article offers a thoughtful account of why disclosing modifiable dementia risk factors to cognitively unimpaired research participants may be ethically defensible. In this Ethics Response, we seek to engage constructively with their arguments, affirming value in a person-centered approach, while also expanding on how cultural, communal, and religious contexts can further illuminate the ethics of returning individual research results. Drawing on emerging ethical issues and examples from diverse settings, this response highlights how stigmatization, religious worldviews, family care traditions, and broader socioeconomic factors may influence the perceived meaning and impact of dementia risk communication.

Journal of Alzheimer s DiseaseVol. 106(2)
Brigham and Women's Hospital (US), Harvard University (US), University of Michigan (US)
Reduced inequalities
Openalex Percentile: Top 4%
Grief, Bereavement, and Mental Health
6.92
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