Experiences and Therapy Needs of Parents With an Infant at High Risk for Development of Unilateral Spastic Cerebral Palsy: A Qualitative Interview Study

<b>Aim:</b> To understand experiences and therapy needs of parents with an infant with unilateral perinatal brain injury and at high risk for unilateral spastic cerebral palsy in the first year. <b>Patients and Methods:</b> Sixteen parents (from 8 children with unilateral spastic cerebral palsy, 3 without) diagnosed with unilateral perinatal brain injury participated in semistructured interviews. Data were analyzed using thematic analysis. <b>Results:</b> The overarching theme, "an unexpected journey," included 4 subthemes: (1) "A roller coaster start"-stressful initial experiences on a neonatal intensive care unit; (2) "Wishing for a crystal ball"-need for information on (future) development; (3) "Reaching for the stars"-value of therapist guidance in supporting infant development; (4) "Growing seeds of confidence"-increased parental confidence in their child's development and their role. <b>Conclusion:</b> Parents have information needs about their child's (future) neurodevelopment. Physical or occupational therapists provide information, monitor motor progress, and guide parents in supporting development and can offer needed reassurance.