What do patients and informal caregivers value in IBD care? A narrative inquiry
Key elements of IBD care valued by patients and informal caregivers include comprehensive support, active involvement, a person-centred approach, easy access to outpatient care, regular follow-ups with trusted HCPs, and remote care complementing outpatient services. Innovation teams should consider these elements when refining and developing innovations in IBD care.
Authors
- Fabiënne G. Smeets (ORCID: https://orcid.org/0000-0002-1761-8312)
- Marieke J. Pierik (ORCID: https://orcid.org/0000-0001-6981-6516)
- E M B Hendrix (ORCID: https://orcid.org/0000-0003-0482-4640)
- Zlatan Mujagic (ORCID: https://orcid.org/0000-0001-5211-0381)
- Tom J.G. Gevers (ORCID: https://orcid.org/0000-0002-3070-8443)
- Menne Scherpenzeel
- Gerard Dijkstra
- Merel Kimman (ORCID: https://orcid.org/0000-0002-5717-5704)
- Govert Veldhuijzen (ORCID: https://orcid.org/0000-0003-2172-9098)
- Stephanie M C Ament (ORCID: https://orcid.org/0000-0002-6186-1563)
- Britt J. M. Thomassen (ORCID: https://orcid.org/0009-0004-2631-5649)
- Marin J. de Jong (ORCID: https://orcid.org/0000-0002-4197-6638)
- Daniëlle van der Horst
Institutions
- University Medical Center Groningen (NL)
- Radboud University Nijmegen (NL)
- University of Aruba (AW)
- Maastricht University Medical Centre (NL)
- Gelre Hospitals (NL)
- Radboud University Medical Center (NL)
- Maastricht University (NL)
- St.Jans Gasthuis Weert (NL)
- Department of Health (TW)
- Crohn's and Colitis UK (GB)
Publication Details
- Journal
- BMC Health Services Research
- Published
- 2025-05-10
- DOI
- https://doi.org/10.1186/s12913-025-12823-5
- Citations
- 3
- Primary Topic
- Inflammatory Bowel Disease
- Type
- article
- Field-Weighted Citation Impact
- 5.45