Patients Are Entitled to Moore: Determining the Relationship Between Phenotype, Genotype, Spleens, Data, and Informed Consent

The increasing use of Artificial Intelligence (AI) in healthcare has the potential to bring significant advancements in clinical decision-making, particularly through predictive analytics and large language models.The power of AI lies in its ability to discern patterns in medical images and patient data, ultimately aiding in diagnosis, treatment, and prognosis.This evolving technology, however, raises important ethical questions about the relationship between patients, their data, and AI models, particularly regarding the use of patient data for both therapeutic and non-therapeutic purposes.This article examines the ethical complexities surrounding the use of patient data in healthcare AI, arguing that patients should be viewed as both recipients of care and as donors when their data is used beyond their immediate therapeutic needs.Patients' dual roles-benefiting from AIdriven diagnostics and treatments while contributing their data to train and improve AI models-necessitates reevaluating informed consent protocols.By drawing parallels between human tissue and patient data, the article highlights that a patient's electronic medical record (EMR), which captures their lived medical experience (phenotype), is as much a part of them as their physical body (genotype).Borrowing from the ethical principles underlying human tissue donation, this article contends that patients must be informed and provide explicit consent when their data is used to develop or update AI models.Such consent ensures

Authors

Publication Details

Journal
Seton Hall Journal of Legislation and Public Policy
Published
2025-01-01
DOI
https://doi.org/10.60095/nljk2075
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Patients Are Entitled to Moore: Determining the Relationship Between Phenotype, Genotype, Spleens, Data, and Informed Consent

Charles E. Binkley
Seton Hall Journal of Legislation and Public Policy
Ethics in Clinical Research
article

Patients Are Entitled to Moore: Determining the Relationship Between Phenotype, Genotype, Spleens, Data, and Informed Consent

Charles E. Binkley
article en

Abstract

The increasing use of Artificial Intelligence (AI) in healthcare has the potential to bring significant advancements in clinical decision-making, particularly through predictive analytics and large language models.The power of AI lies in its ability to discern patterns in medical images and patient data, ultimately aiding in diagnosis, treatment, and prognosis.This evolving technology, however, raises important ethical questions about the relationship between patients, their data, and AI models, particularly regarding the use of patient data for both therapeutic and non-therapeutic purposes.This article examines the ethical complexities surrounding the use of patient data in healthcare AI, arguing that patients should be viewed as both recipients of care and as donors when their data is used beyond their immediate therapeutic needs.Patients' dual roles-benefiting from AIdriven diagnostics and treatments while contributing their data to train and improve AI models-necessitates reevaluating informed consent protocols.By drawing parallels between human tissue and patient data, the article highlights that a patient's electronic medical record (EMR), which captures their lived medical experience (phenotype), is as much a part of them as their physical body (genotype).Borrowing from the ethical principles underlying human tissue donation, this article contends that patients must be informed and provide explicit consent when their data is used to develop or update AI models.Such consent ensures

Seton Hall Journal of Legislation and Public PolicyVol. 49(3)
Openalex Percentile: Top 86%
Ethics in Clinical Research
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.