Families' Perceptions of Powered Mobility for Participation in Children With Spinal Muscular Atrophy Type 1: A Photovoice Study

Families were actively involved in multiple stages of the study, including its design, data collection and interpretation and dissemination of the results. Using the photovoice method, parents documented their children's experiences with powered mobility through photographs and comments, highlighting both benefits and challenges. Their input was crucial in identifying real-life barriers and needs, ensuring that the study reflected the authentic experiences of families navigating powered mobility. Additionally, they provided valuable insights during interviews, contributing to a deeper understanding of the emotional, social and practical impacts of the intervention. Their perspectives helped to shape the analysis and reinforce the importance of personalised mobility solutions.