Community‐engaged efforts to increase retention of Black American online registry participants
CEDAR is an online AD/ADRD registry engagement intervention for Black participants.The intervention is community-engaged, digital, culturally-informed, and multifaceted.Engagement rates increased before versus during the intervention for enrollees.Engagement rates decreased over the same time period for non-enrolled participants.Results need to be interpreted with caution due to selection biases.
Authors
- Jennefer Sorce
- Catherine Conti
- Juliet Fockler
- Diana Truran (ORCID: https://orcid.org/0000-0001-7159-2216)
- Xinyue Deng (ORCID: https://orcid.org/0009-0009-0916-2325)
- Miriam T. Ashford (ORCID: https://orcid.org/0000-0003-4045-6435)
- Mónica Rivera Mindt (ORCID: https://orcid.org/0000-0001-6350-321X)
- R. Scott Mackin (ORCID: https://orcid.org/0000-0001-8072-476X)
- Roxanne Alaniz
- Derek Flenniken
- Desiree Byrd (ORCID: https://orcid.org/0000-0001-5564-213X)
- Heining Cham (ORCID: https://orcid.org/0000-0002-2933-056X)
- Anna Aaronson (ORCID: https://orcid.org/0000-0002-5231-9684)
- Sandhya Kannan
- Rachel L. Nosheny (ORCID: https://orcid.org/0000-0003-4995-8319)
- Carl V. Hill (ORCID: https://orcid.org/0000-0002-7917-1341)
- Carole Cypress
- Danqi Zhu
- Robert Turner (ORCID: https://orcid.org/0000-0003-4229-7087)
- Michael Walter Weiner (ORCID: https://orcid.org/0000-0002-0144-1954)
- Monica R. Camacho
Institutions
- Queens College, CUNY (US)
- Alzheimer's Association (US)
- San Francisco VA Medical Center (US)
- Fordham University (US)
- Duke University (US)
- University of California, San Francisco (US)
- University of California System (US)
- Advanced Imaging Research (United States) (US)
- Community Partners (US)
- Northern California Institute for Research and Education (US)
- Icahn School of Medicine at Mount Sinai (US)
Publication Details
- Journal
- Alzheimer s & Dementia Translational Research & Clinical Interventions
- Published
- 2025-04-01
- DOI
- https://doi.org/10.1002/trc2.70046
- Citations
- 1
- Primary Topic
- Dementia and Cognitive Impairment Research
- Type
- article
- Field-Weighted Citation Impact
- 1.47
Funders
- Foundation for the National Institutes of Health
- Genentech Foundation
- National Institutes of Health
- Genentech