“I always feel like I’m the first deaf person they have ever met:” Deaf Awareness, Accessibility and Communication in the United Kingdom’s National Health Service (NHS): How can we do better?
This study presents the largest UK-wide dataset of its kind, and findings highlight the widespread non-compliance with the legally mandated Accessible Information Standards (AIS) within NHS services. The communication barriers identified in this study have significant and long-term implications for the well-being of PDHL patients. Utilising these findings, our working group has developed a set of 'Recommendations For Change' to improve deaf awareness and effective communication across the NHS.
Authors
- Samuel Gridley Howe
- Sarah Hughes (ORCID: https://orcid.org/0000-0001-5656-1198)
- Crystal Rolfe
- Angela Dickinson (ORCID: https://orcid.org/0000-0001-7681-2732)
- Bhavisha Parmar (ORCID: https://orcid.org/0000-0002-5772-5067)
- Emma Stapleton (ORCID: https://orcid.org/0000-0002-7763-9705)
- P. Méré
- Laura Turton
- Sian Calvert (ORCID: https://orcid.org/0000-0002-1764-6663)
- Helen Henshaw (ORCID: https://orcid.org/0000-0002-0547-4403)
- R. Stevenson (ORCID: https://orcid.org/0009-0009-7981-0850)
- Emmanuelle Blondiaux-Ding
- Zara Musker
Institutions
- Bionics Institute (AU)
- CARE USA (US)
- University of Cambridge (GB)
- BCS — The Chartered Institute for IT (GB)
- Norfolk and Norwich University Hospital (GB)
- NHS Tayside (GB)
- British Thoracic Society (GB)
- Royal National Institute for Deaf People (GB)
- Manchester Royal Infirmary (GB)
- University of Manchester (GB)
- Nottingham Biomedical Research Centre (GB)
- NIHR Manchester Biomedical Research Centre (GB)
- Leeds Dental Hospital (GB)
- University College London (GB)
- University of Birmingham (GB)
Publication Details
- Journal
- PLoS ONE
- Published
- 2025-05-07
- DOI
- https://doi.org/10.1371/journal.pone.0322850
- Citations
- 2
- Primary Topic
- Hearing Impairment and Communication
- Type
- article
- Field-Weighted Citation Impact
- 6.89
Funders
- NHS Blood and Transplant
- Programme Grants for Applied Research
- Research for Patient Benefit Programme
- NIHR Nottingham Biomedical Research Centre