Engaging patients, family caregivers and healthcare providers to develop metrics tailored to a palliative care population: a content validity process
The methodology provided can be used as an example of ways to engage and leverage the experiences of healthcare system users and healthcare providers throughout the outcome measures development process. The next steps will be to utilize the adapted scales as intervention outcome measures in a subsequent implementation study.
Authors
- Shirley H. Bush (ORCID: https://orcid.org/0000-0001-8907-1283)
- Vinay Kumar Mysore
- Geneviève Lalumière
- Natalie C. Ernecoff (ORCID: https://orcid.org/0000-0003-4753-8492)
- Sarina Roslyn Isenberg (ORCID: https://orcid.org/0000-0001-6059-5366)
- Jessica L. Schue (ORCID: https://orcid.org/0000-0002-5188-5692)
- Madeline McCoy
- Kirsten Wentlandt (ORCID: https://orcid.org/0000-0002-1873-7794)
- Krystal Kehoe MacLeod (ORCID: https://orcid.org/0000-0002-3029-755X)
- Taylor Shorting (ORCID: https://orcid.org/0000-0002-2781-9572)
- Marianne Weiss (ORCID: https://orcid.org/0000-0003-4217-9822)
- Daniel Vincent (ORCID: https://orcid.org/0000-0003-1582-3942)
- Meghan Savigny
- Meaghen Hagarty
- Edward Fitzgibbon
- Jill Rice
- Daniel David (ORCID: https://orcid.org/0009-0004-0242-5181)
Institutions
- Marquette University (US)
- RAND Corporation (US)
- University Health Network (CA)
- Johns Hopkins University (US)
- University of Ottawa (CA)
- Brooklyn Law School (US)
- Ottawa Hospital (CA)
- Center for Brooklyn History (US)
- Bruyère (CA)
- New York University (US)
- Brooklyn College (US)
Publication Details
- Journal
- Journal of Patient-Reported Outcomes
- Published
- 2025-05-06
- DOI
- https://doi.org/10.1186/s41687-025-00885-2
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- University of Ottawa
- Canadian Frailty Network
- Canadian Institutes of Health Research