Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium
<ns3:p>Background Due to the increased emphasis on co-produced and community led research, neurodiversity within research communities has sparked interest, particularly within the context of autism research. This study investigates the presence of neurodivergent researchers within a neuroscience research consortium, with a particular focus on autism prevalence. Methods Using survey data collected from active contributors to the consortium, we examined the self-reported neurodivergent status of researchers, including formal diagnoses of autism, ongoing diagnostic processes, and self-identification as neurodivergent. Results A proportion of the surveyed researchers reported formal diagnoses or self-identification as autistic (23%), that were significantly more frequent at career stages below and including postdoctoral roles (Chi-Square p-value = 0.01). Further, we identified an association between neurodivergence and a diagnosis of a mental health condition among researchers (Coef. = 1.93, p-value = 0.002), highlighting the importance of accommodating neurodiversity within research environments. Conclusions This study underscores the need for inclusivity and support for neurodivergent researchers, particularly in the context of neuroscience that does or does not yet embed participatory research initiatives. By amplifying the voices of neurodivergent researchers, research communities can enhance the equity and impact of their outcomes and foster better public engagement by sharing experiences and understanding the needs of community members.</ns3:p>
Authors
- Georgia Lockwood Estrin (ORCID: https://orcid.org/0000-0001-9865-1415)
- Sarah N. Douglas (ORCID: https://orcid.org/0000-0003-1342-4008)
- Alexandra Lautarescu (ORCID: https://orcid.org/0000-0001-7680-8936)
- Jerneja Terčon (ORCID: https://orcid.org/0000-0001-7264-9464)
- Eliza Eaton (ORCID: https://orcid.org/0000-0001-8424-1802)
- Bethany Oakley (ORCID: https://orcid.org/0000-0002-1968-134X)
- Teresa Del Bianco (ORCID: https://orcid.org/0000-0002-7162-0042)
- J Plas (ORCID: https://orcid.org/0009-0003-4268-2230)
- Eva Loth (ORCID: https://orcid.org/0000-0001-9458-9167)
- Mary Doherty (ORCID: https://orcid.org/0000-0002-6995-3745)
- David Belton
- Emily J.H. Jones
Publication Details
- Journal
- Open Research Europe
- Published
- 2025-05-06
- DOI
- https://doi.org/10.12688/openreseurope.19394.1
- Primary Topic
- Autism Spectrum Disorder Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Wellcome Trust
- UK Research and Innovation
- Horizon 2020 Framework Programme
- Medical Research Council