Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium

<ns3:p>Background Due to the increased emphasis on co-produced and community led research, neurodiversity within research communities has sparked interest, particularly within the context of autism research. This study investigates the presence of neurodivergent researchers within a neuroscience research consortium, with a particular focus on autism prevalence. Methods Using survey data collected from active contributors to the consortium, we examined the self-reported neurodivergent status of researchers, including formal diagnoses of autism, ongoing diagnostic processes, and self-identification as neurodivergent. Results A proportion of the surveyed researchers reported formal diagnoses or self-identification as autistic (23%), that were significantly more frequent at career stages below and including postdoctoral roles (Chi-Square p-value = 0.01). Further, we identified an association between neurodivergence and a diagnosis of a mental health condition among researchers (Coef. = 1.93, p-value = 0.002), highlighting the importance of accommodating neurodiversity within research environments. Conclusions This study underscores the need for inclusivity and support for neurodivergent researchers, particularly in the context of neuroscience that does or does not yet embed participatory research initiatives. By amplifying the voices of neurodivergent researchers, research communities can enhance the equity and impact of their outcomes and foster better public engagement by sharing experiences and understanding the needs of community members.</ns3:p>

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Publication Details

Journal
Open Research Europe
Published
2025-05-06
DOI
https://doi.org/10.12688/openreseurope.19394.1
Primary Topic
Autism Spectrum Disorder Research
Type
article
Field-Weighted Citation Impact
0.00

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article

Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium

Georgia Lockwood Estrin, Sarah N. Douglas, Alexandra Lautarescu, Jerneja Terčon et al.
1 links
Open Research Europe
Autism Spectrum Disorder Research
article

Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium

Georgia Lockwood Estrin, Sarah N. Douglas, Alexandra Lautarescu, Jerneja Terčon, Eliza Eaton, Bethany Oakley, Teresa Del Bianco, J Plas, Eva Loth, Mary Doherty, David Belton, Emily J.H. Jones
article en

Abstract

<ns3:p>Background Due to the increased emphasis on co-produced and community led research, neurodiversity within research communities has sparked interest, particularly within the context of autism research. This study investigates the presence of neurodivergent researchers within a neuroscience research consortium, with a particular focus on autism prevalence. Methods Using survey data collected from active contributors to the consortium, we examined the self-reported neurodivergent status of researchers, including formal diagnoses of autism, ongoing diagnostic processes, and self-identification as neurodivergent. Results A proportion of the surveyed researchers reported formal diagnoses or self-identification as autistic (23%), that were significantly more frequent at career stages below and including postdoctoral roles (Chi-Square p-value = 0.01). Further, we identified an association between neurodivergence and a diagnosis of a mental health condition among researchers (Coef. = 1.93, p-value = 0.002), highlighting the importance of accommodating neurodiversity within research environments. Conclusions This study underscores the need for inclusivity and support for neurodivergent researchers, particularly in the context of neuroscience that does or does not yet embed participatory research initiatives. By amplifying the voices of neurodivergent researchers, research communities can enhance the equity and impact of their outcomes and foster better public engagement by sharing experiences and understanding the needs of community members.</ns3:p>

Open Research EuropeVol. 5
Wellcome Trust, UK Research and Innovation, Horizon 2020 Framework Programme, Medical Research Council
Openalex Percentile: Top 91%
Autism Spectrum Disorder Research
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