Proof-of-Concept of Online-Only Enrollment for Collecting Longitudinal Patient-Reported Outcomes in Young Individuals With Congenital Heart Disease
Recruiting participants with CHD without direct contact was ineffective at population level. Several factors may explain these results, including a weaker community network among participants than anticipated, apprehension about sharing personal information online, and difficulty effectively targeting participants on the internet.
Authors
- Louis-Olivier Roy (ORCID: https://orcid.org/0009-0008-0840-5447)
- Laurence Watelle (ORCID: https://orcid.org/0000-0002-3920-9042)
- Marc Pouliot (ORCID: https://orcid.org/0000-0002-2466-5424)
- V. Carrier
- Frédéric Dallaire (ORCID: https://orcid.org/0000-0002-0489-2523)
Institutions
- Université de Sherbrooke (CA)
- Centre Hospitalier Universitaire de Sherbrooke (CA)
Publication Details
- Journal
- CJC Pediatric and Congenital Heart Disease
- Published
- 2025-05-06
- DOI
- https://doi.org/10.1016/j.cjcpc.2025.04.008
- Primary Topic
- Healthcare Policy and Management
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Fondation des Etoiles