The Hidden Burden of Craniosynostosis in Brazil’s Unified Health System: A 10-Year Retrospective Analysis of the Disease’s Diagnoses and Surgical Operations
Although diagnoses and operations increased over time, Brazil lags behind forecasted needs. Optimizing integrated policy implementation and proactively incorporating rare diseases in the health care system are essential to improving access to craniosynostosis care.
Authors
- Nivaldo Alonso (ORCID: https://orcid.org/0000-0003-1532-9610)
- Ayla Gerk (ORCID: https://orcid.org/0000-0001-8833-2939)
- Letícia Nunes Campos (ORCID: https://orcid.org/0000-0002-8064-5698)
- John G. Meara (ORCID: https://orcid.org/0000-0003-4369-3209)
- Cristina Pires Camargo (ORCID: https://orcid.org/0000-0002-3134-0003)
- Sofia Wagemaker
- Luiza Telles (ORCID: https://orcid.org/0000-0003-2423-9430)
- Ana Kim
- Beatriz Laus Pereira Lima
Institutions
- Boston Children's Hospital (US)
- Harvard University (US)
- Universidade de São Paulo (BR)
- Montreal Children's Hospital (CA)
- Hospital of Sobrapar (BR)
- Estácio (Brazil) (BR)
- Centro Universitário São Camilo (BR)
- Kursk State Medical University (RU)
- McGill University (CA)
- Universidade de Pernambuco (BR)
- Universidade São Francisco (BR)
Publication Details
- Journal
- Journal of Craniofacial Surgery
- Published
- 2025-05-05
- DOI
- https://doi.org/10.1097/scs.0000000000011475
- Primary Topic
- Craniofacial Disorders and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00