Developing a congenital hyperinsulinism prioritized research agenda: a patient-driven international collaborative research network

The formation of the CRN and the development of the PRA have already led to new collaborations, which are fundamental to progress. The PRA process allowed individuals to come to a consensus on the critical needs and to chart short- and long-term approaches to fill the gaps. CRN members continue to meet regularly in working groups focused on special projects to fill gaps identified as high priority by the PRA. Through this active and multidimensional alliance, the CRN is re-imagining the future for people living with HI by improving outcomes through more timely and accurate diagnosis, more effective and less burdensome treatments, more easily obtainable expert care, and better tools to manage HI.

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Publication Details

Journal
Frontiers in Endocrinology
Published
2025-05-02
DOI
https://doi.org/10.3389/fendo.2025.1549310
Citations
1
Primary Topic
Hyperglycemia and glycemic control in critically ill and hospitalized patients
Type
article
Field-Weighted Citation Impact
1.29

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article

Developing a congenital hyperinsulinism prioritized research agenda: a patient-driven international collaborative research network

Antonia Dastamani, Mahlet N. Mesfin, Jennifer Schmitt, Tai Pasquini et al.
1 citations
Frontiers in Endocrinology
Hyperglycemia and glycemic control in critically ill and hospitalized patients
1.29
article

Developing a congenital hyperinsulinism prioritized research agenda: a patient-driven international collaborative research network

Antonia Dastamani, Mahlet N. Mesfin, Jennifer Schmitt, Tai Pasquini, Paul Thornton, David Gillis, Sarah Elizabeth Flanagan, Senthil Senniappan, David Zangen, Diva D. De León, Katherine Lord, Indraneel Banerjee, Louise S. Conwell, Charles A. Stanley, Julie Raskin, Jennifer M. Kalish, Henrik Thybo Christesen
article en
1 citations

Abstract

The formation of the CRN and the development of the PRA have already led to new collaborations, which are fundamental to progress. The PRA process allowed individuals to come to a consensus on the critical needs and to chart short- and long-term approaches to fill the gaps. CRN members continue to meet regularly in working groups focused on special projects to fill gaps identified as high priority by the PRA. Through this active and multidimensional alliance, the CRN is re-imagining the future for people living with HI by improving outcomes through more timely and accurate diagnosis, more effective and less burdensome treatments, more easily obtainable expert care, and better tools to manage HI.

Frontiers in EndocrinologyVol. 16
Children's Hospital of Philadelphia (US), University of Liverpool (GB), Hebrew University of Jerusalem (IL), University of Exeter (GB), Hadassah Medical Center (IL), Great Ormond Street Hospital for Children NHS Foundation Trust (GB), Alder Hey Children's Hospital (GB), Royal Manchester Children's Hospital (GB)
European Commission
Industry, innovation and infrastructure
Openalex Percentile: Top 20%
Hyperglycemia and glycemic control in critically ill and hospitalized patients
1.29
DOIOpen Access PDFOpenAlex
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