Integrating public preferences to overcome racial disparities in research: findings from a US survey on enhancing trust in research data-sharing practices
It is imperative for data-sharing policies to integrate diverse patient viewpoints to mitigate risk of distrust and a potential unintended consequence of lower participation among racial and ethnic minority participants in research.
Authors
- Stephanie Niño de Rivera (ORCID: https://orcid.org/0000-0002-3862-149X)
- Meghan Reading Turchioe (ORCID: https://orcid.org/0000-0002-6264-6320)
- Shalom Omollo (ORCID: https://orcid.org/0000-0002-4181-7020)
- Natalie C. Benda (ORCID: https://orcid.org/0000-0002-3256-0243)
- Lydia S. Dugdale
- Ruth Masterson Creber (ORCID: https://orcid.org/0000-0002-4238-9902)
- Yashika Sharma
- Marianne Sharko (ORCID: https://orcid.org/0000-0002-1103-7525)
- Yihong Zhao (ORCID: https://orcid.org/0000-0001-8730-0476)
- Sarah Eslami
Institutions
- NewYork–Presbyterian Hospital (US)
- Cornell University (US)
- Columbia University Irving Medical Center (US)
- New York Hospital Queens (US)
- Presbyterian Hospital (US)
- Columbia University (US)
Publication Details
- Journal
- JAMIA Open
- Published
- 2025-05-02
- DOI
- https://doi.org/10.1093/jamiaopen/ooaf031
- Citations
- 1
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 1.88
Funders
- National Heart, Lung, and Blood Institute
- National Institute of Neurological Disorders and Stroke
- NHLBI Division of Intramural Research