Understanding Barriers to Engagement With a Prostate Cancer Research and Genetic Risk Service Among UK Men of Black African or Black Caribbean Ancestry
We initially attended community prostate cancer awareness events to speak to members of the community. We established trusted and two-way relationships with Black 'community champions' who lead support groups in the Black community and often have a lived experience of prostate cancer. We were invited to attend their support groups to deliver awareness talks and address concerns about prostate cancer risk and screening. We then conducted discussion groups and collected data. Our analysis was conducted in partnership with our community champions. Our findings are described in this paper, with their co-authorship. We have also disseminated our findings in a co-produced newsletter to feed back our findings to the community members, who gave us their time. We have also shared information at a stakeholder day, attended by 65 individuals from the community, where we also planned future work. We have reimbursed participants for their time, which is in line with NIHR guidance. As described above, patient and public involvement has been the guiding principle throughout this project.
Authors
- Elizabeth Bancroft (ORCID: https://orcid.org/0000-0002-5482-5660)
- Saran Green
- Rosalind A. Eeles (ORCID: https://orcid.org/0000-0002-3698-6241)
- Emma Hainsworth (ORCID: https://orcid.org/0000-0003-3171-4201)
- Rose Hall (ORCID: https://orcid.org/0000-0002-7961-0420)
- Jeff Thompson
- Éva Morava (ORCID: https://orcid.org/0000-0001-7441-700X)
- James Denzil
Institutions
- Royal Marsden NHS Foundation Trust (GB)
- Institute of Cancer Research (GB)
- London Cancer (GB)
Publication Details
- Journal
- Health Expectations
- Published
- 2025-04-29
- DOI
- https://doi.org/10.1111/hex.70282
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Royal Marsden NHS Foundation Trust
- National Institute for Health and Care Research
- Programme Grants for Applied Research