Definition, investigation and management of gastrointestinal dystonia in children and young people with neurodisability
We present a comprehensive review, agreement on the definition of GID and recommendations on management pathways agreed by a selected panel of multidisciplinary experts. Clear diagnostic criteria will enable important epidemiological work to record outcomes for this complex patient group. Identifying the associated morbidity, burden of care and mortality will help advocate for appropriate health resources and support to carers and families.
Authors
- Daniel Edward Lumsden (ORCID: https://orcid.org/0000-0002-5524-6177)
- Elena Cernat (ORCID: https://orcid.org/0000-0001-7686-5690)
- Susanna Meade (ORCID: https://orcid.org/0000-0002-8283-6148)
- Sue Protheroe
- Catherine Richards (ORCID: https://orcid.org/0000-0001-6237-3409)
- Julian Thomas (ORCID: https://orcid.org/0000-0003-3933-1264)
- Susie Holt (ORCID: https://orcid.org/0000-0002-8309-1707)
- Helen Wells (ORCID: https://orcid.org/0000-0003-1149-4539)
- Timothy Warlow (ORCID: https://orcid.org/0009-0002-9618-4715)
- Mark Samaan (ORCID: https://orcid.org/0000-0002-4057-9200)
- Fiona McElligott
- Haidee Norton
- Paul Eunson (ORCID: https://orcid.org/0000-0002-6364-2305)
- Alex C. H. Lee
- Michelle Brooks (ORCID: https://orcid.org/0000-0002-4240-472X)
- David Campbell (ORCID: https://orcid.org/0000-0002-4502-5629)
- Claire Teresa Lundy (ORCID: https://orcid.org/0000-0001-9657-353X)
- Mohamed Mutalib (ORCID: https://orcid.org/0000-0001-8869-9466)
- Osvaldo Borrelli
- Santosh Mordekar (ORCID: https://orcid.org/0000-0002-6135-1969)
- Katharine Forrest
- Charlie Fairhurst (ORCID: https://orcid.org/0000-0002-9534-0563)
- Yi Liang (ORCID: https://orcid.org/0000-0001-5864-9783)
- Andrew R. Barclay (ORCID: https://orcid.org/0000-0002-1182-8765)
- Jo Griffiths
- Catherine Paxton
- Lisa Whyte
- Shoana Quinn (ORCID: https://orcid.org/0000-0001-6809-7839)
- Gregor Walker
Institutions
- University College Dublin (IE)
- Belfast Health and Social Care Trust (GB)
- Swansea Bay University Health Board (GB)
- North Bristol NHS Trust (GB)
- University Hospitals Birmingham NHS Foundation Trust (GB)
- St Thomas' Hospital (GB)
- University of Liverpool (GB)
- Guy's and St Thomas' NHS Foundation Trust (GB)
- Leeds Teaching Hospitals NHS Trust (GB)
- Great Ormond Street Hospital for Children NHS Foundation Trust (GB)
- Royal Hospital for Children (GB)
- Royal Victoria Infirmary (GB)
- Royal Edinburgh Hospital (GB)
- Association of Surgeons of Great Britain and Ireland (GB)
- John Radcliffe Hospital (GB)
- University Hospital Southampton NHS Foundation Trust (GB)
- Tallaght University Hospital (IE)
- Children's Health Ireland at Crumlin (IE)
- Birmingham Children's Hospital (GB)
- Sheffield Children's NHS Foundation Trust (GB)
- Naomi House and Jacksplace (GB)
- St. Thomas Hospital (CA)
- Great North Children's Hospital (GB)
- Evelina London Children's Healthcare (GB)
- British Association of Urological Surgeons (GB)
- Birmingham Women’s and Children’s NHS Foundation Trust (GB)
- Alder Hey Children's Hospital (GB)
- Children in Scotland (GB)
- Sheffield Children's Hospital (GB)
Publication Details
- Journal
- Archives of Disease in Childhood
- Published
- 2025-04-29
- DOI
- https://doi.org/10.1136/archdischild-2024-327551
- Citations
- 3
- Primary Topic
- Neurological disorders and treatments
- Type
- article
- Field-Weighted Citation Impact
- 4.17