Parental Care as Infrastructure for Adults with Intellectual Disabilities in Norway

We explore the care work of parents in the lives of adults with intellectual disabilities in Norway. We theorize these parental contributions as a form of care infrastructure. Through their presence in the daily lives of the persons with intellectual disabilities as well as through maintenance work and repair work on welfare services, parents respond to unpredictable care provision in the welfare state. These efforts sometimes entail invention and result in new types of care structures, which we call "care pioneering."

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Publication Details

Journal
Medical Anthropology
Published
2025-04-30
DOI
https://doi.org/10.1080/01459740.2025.2495627
Primary Topic
Healthcare innovation and challenges
Type
article
Field-Weighted Citation Impact
0.00

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article

Parental Care as Infrastructure for Adults with Intellectual Disabilities in Norway

Halvor Hanisch, Jenny Frogner
Medical Anthropology
Healthcare innovation and challenges
article

Parental Care as Infrastructure for Adults with Intellectual Disabilities in Norway

Halvor Hanisch, Jenny Frogner
article en

Abstract

We explore the care work of parents in the lives of adults with intellectual disabilities in Norway. We theorize these parental contributions as a form of care infrastructure. Through their presence in the daily lives of the persons with intellectual disabilities as well as through maintenance work and repair work on welfare services, parents respond to unpredictable care provision in the welfare state. These efforts sometimes entail invention and result in new types of care structures, which we call "care pioneering."

Medical AnthropologyVol. 44(4)
Norwegian University of Science and Technology (NO), VID Specialized University (NO)
Fakultet for medisin og helsevitenskap, Norges Teknisk-Naturvitenskapelige Universitet
Openalex Percentile: Top 91%
Healthcare innovation and challenges
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