HOPE for Hypermobile Ehlers–Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD)—A Pilot Randomised Controlled Trial of Feasibility, Acceptability and Appropriateness
Pain is of high concern among people with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD), yet there are limited online pain management resources for them. This pilot trial of the novel Hypermobile Online Pain managemEnt (HOPE) program is important in guiding the creation of evidence-based and stakeholder-relevant online resources. Promising results suggest the importance of further refinement and retesting its effectiveness before wider implementation among the hEDS/HSD population so as to empower them in pain self-management.
Authors
- Verity Pacey (ORCID: https://orcid.org/0000-0002-5577-2732)
- Cliffton Chan
- Sarah Kobayashi (ORCID: https://orcid.org/0000-0001-7816-2198)
- Alan J. Hakim (ORCID: https://orcid.org/0000-0001-7170-1697)
- Min Tze Chew (ORCID: https://orcid.org/0000-0003-3197-1064)
- Leslie L. Nicholson (ORCID: https://orcid.org/0000-0001-9178-2535)
- Emre İlhan (ORCID: https://orcid.org/0000-0002-4075-0733)
Institutions
- The University of Sydney (AU)
- Macquarie University (AU)
Publication Details
- Journal
- European Journal of Pain
- Published
- 2025-04-29
- DOI
- https://doi.org/10.1002/ejp.70030
- Citations
- 1
- Primary Topic
- Botulinum Toxin and Related Neurological Disorders
- Type
- article
- Field-Weighted Citation Impact
- 1.39
Funders
- Australian Government
- Macquarie University