European Principles of Nursing Care for Persons With Inherited Bleeding Disorders

In summary, PwBD should have access to nurses who provide coordinated person-centred care across all aspects of their lives. This includes education, treatment management, life-stage support, surgical coordination, genetic counselling and special attention to the needs of women and girls. The nurses must also stay informed about research developments to ensure up-to-date care. The PoNC strengthen nursing care by providing a framework to address patient needs and may guide the development of care strategies, empowering patients and HCPs to advocate for high-quality care. These principles promote standardised nursing care in EHCCC and EHTC, to be applied alongside local policies and EAHAD's accreditation standards.