Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires
People with cancer and informal caregivers played a significant role in this study. They were involved as co-researchers in all stages of the development process of the EUonQoL-Kit. In addition, they were involved in the qualitative analysis of the data presented in this article, the writing of the project report and the writing of this article as co-authors.
Authors
- Aude Sirven
- Carina Dantas (ORCID: https://orcid.org/0000-0002-9887-7622)
- Montse Ferrer (ORCID: https://orcid.org/0000-0001-9867-7391)
- Augusto Caraceni (ORCID: https://orcid.org/0000-0002-0375-6204)
- Caitriona Higgins (ORCID: https://orcid.org/0009-0002-9832-7820)
- F. van Schelven (ORCID: https://orcid.org/0000-0003-1728-5025)
- Laura Pinnavaia
- Norbert Couespel (ORCID: https://orcid.org/0000-0003-1579-8548)
- Galina Velikova (ORCID: https://orcid.org/0000-0003-1899-5942)
- Gennaro Ciliberto (ORCID: https://orcid.org/0000-0003-2851-8605)
- Giovanni Apolone (ORCID: https://orcid.org/0000-0001-5179-104X)
- Jany Rademakers (ORCID: https://orcid.org/0000-0003-2742-4543)
- Hugo Vachon (ORCID: https://orcid.org/0000-0003-1259-649X)
- Gabriella Pravettoni (ORCID: https://orcid.org/0000-0002-4843-4663)
- Ricardo Pietrobon (ORCID: https://orcid.org/0000-0003-2996-2193)
- Cinzia Brunelli (ORCID: https://orcid.org/0000-0003-3905-1289)
- Merel Engelaar (ORCID: https://orcid.org/0009-0008-6302-1171)
- Claudio Lombardo (ORCID: https://orcid.org/0000-0001-7554-449X)
- Nanne Bos
- Stein Kaasa (ORCID: https://orcid.org/0000-0002-3268-8036)
- Mogens Grøenvold
- Inke Minnée‐van Braak
- Tapani Kalmi
- Marion L'Hote
- Clémentine Rialland
Institutions
- University of Copenhagen (DK)
- University of Leeds (GB)
- University of Turku (FI)
- University of Milan (IT)
- Frederiksberg Hospital (DK)
- European CanCer Organisation (BE)
- St James's University Hospital (GB)
- Maastricht University (NL)
- Netherlands Institute for Health Services Research (NL)
- European Organisation for Research and Treatment of Cancer (BE)
- Organisation of European Cancer Institutes (BE)
- Hospital Del Mar (ES)
- UniCancer Group (FR)
- Istituti di Ricovero e Cura a Carattere Scientifico (IT)
- Fondazione IRCCS Istituto Nazionale dei Tumori (IT)
- European Institute of Oncology (IT)
Publication Details
- Journal
- Health Expectations
- Published
- 2025-04-29
- DOI
- https://doi.org/10.1111/hex.70267
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- European Commission