Development of a modular patient-reported outcome and experience measure on patient needs and benefits in CLL (PBI-CLL)
The PBI-CLL is the first instrument to assess patients' needs and benefits in CLL. The heterogeneity we found in patient needs and preferences underlines the importance of a modular instrument which measures treatment goals and benefits in a standardized way. The PBI-CLL shall support both patient-centred therapeutic decision making and treatment evaluation in clinical practice, as well as patient-centred benefit assessment in clinical and health care research. It should therefore be tested for its psychometric properties in a subsequent validation study.
Authors
- Christine Blome (ORCID: https://orcid.org/0000-0002-1163-1639)
- Julia von Tresckow (ORCID: https://orcid.org/0000-0001-5873-4603)
- Minna Voigtländer
- Helen Beckmann
- Judith Rusch
- Beke Hester (ORCID: https://orcid.org/0000-0002-1889-4757)
Institutions
- Universität Hamburg (DE)
- University Medical Center Hamburg-Eppendorf (DE)
- Essen University Hospital (DE)
- AstraZeneca (Germany) (DE)
- West German Heart and Vascular Center Essen (DE)
Publication Details
- Journal
- Journal of Patient-Reported Outcomes
- Published
- 2025-04-29
- DOI
- https://doi.org/10.1186/s41687-025-00882-5
- Primary Topic
- Chronic Lymphocytic Leukemia Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- AstraZeneca
- Deutsche Forschungsgemeinschaft
- Universitätsklinikum Hamburg-Eppendorf