Consensus on Adolescent and Young Adult HIV Research Consent in Low- and Middle-Income Countries
Greater engagement of both AYAs and parents may help to enhance consent processes and increase the inclusion of AYAs in LMIC HIV research studies. The resulting consensus statement provides practical strategies for implementing improved consent processes for AYA research participation at the organizational, community, and policy levels, which may help foster greater inclusion of AYAs in HIV research and address existing data gaps.
Authors
- Lauren Fidelak
- Sonam Shah (ORCID: https://orcid.org/0009-0005-3608-5207)
- Abdulhammed Opeyemi Babatunde (ORCID: https://orcid.org/0000-0002-3648-5340)
- Kelechi Chima (ORCID: https://orcid.org/0000-0002-0271-5160)
- Stuart Rennie (ORCID: https://orcid.org/0000-0003-3844-972X)
- Linda‐Gail Bekker (ORCID: https://orcid.org/0000-0002-0755-4386)
- Susan Nkengasong
- Nadia A. Sam‐Agudu
- Ucheoma Nwaozuru (ORCID: https://orcid.org/0000-0002-0680-0928)
- Suzanne Day (ORCID: https://orcid.org/0000-0001-7546-8749)
- Juliet Iwelunmor (ORCID: https://orcid.org/0000-0003-1376-5443)
- Bill G. Kapogiannis (ORCID: https://orcid.org/0000-0003-0754-9090)
- Chisom Obiezu‐Umeh (ORCID: https://orcid.org/0000-0003-3881-9313)
- Erin C. Wilson (ORCID: https://orcid.org/0000-0002-0237-495X)
- Titilola Gbaja‐Biamila (ORCID: https://orcid.org/0000-0003-2958-2924)
- Elzette Rousseau (ORCID: https://orcid.org/0000-0002-6487-6736)
- Seema Shah (ORCID: https://orcid.org/0000-0001-7726-1186)
- Joseph D. Tucker (ORCID: https://orcid.org/0000-0003-2804-1181)
- Ujunwa F. Onyeama (ORCID: https://orcid.org/0000-0002-0455-7100)
- Weiming Tang
- Oliver Ezechi
Institutions
- Northwestern University (US)
- University of North Carolina at Chapel Hill (US)
- Lurie Children's Hospital (US)
- National Institutes of Health (US)
- University of Cape Coast (GH)
- Desmond Tutu HIV Foundation (ZA)
- University of Cape Town (ZA)
- University of Ibadan (NG)
- London School of Hygiene & Tropical Medicine (GB)
- San Francisco Department of Public Health (US)
- Institute of Human Virology (NG)
- University of Minnesota Medical Center (US)
- Wake Forest University (US)
- Saint Louis University (US)
- Nigerian Institute of Medical Research (NG)
Publication Details
- Journal
- JAMA Network Open
- Published
- 2025-04-29
- DOI
- https://doi.org/10.1001/jamanetworkopen.2025.7879
- Citations
- 1
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 1.88
Funders
- Gilead Sciences
- ViiV Healthcare
- National Institutes of Health
- National Institute of Allergy and Infectious Diseases
- National Institute of Child Health and Human Development
- National Institute on Minority Health and Health Disparities
- Eunice Kennedy Shriver National Institute of Child Health and Human Development