A qualitative study on the subjective experience of prolonged care among family members of patients with moderate to severe dementia

The subjective feelings of families of patients with moderate to severe dementia about prolonged care are complex and specific. Family members face tremendous pressures, still lack social support, and lack coordinated communication among communities, families, and hospitals. In the future, we should learn from the practical experience of prolonged care in foreign countries, fully integrate with China's national conditions, promote the improvement of the prolonged care system for patients with dementia, accelerate the construction of community-based professional care institutions, gain a deeper understanding of the challenges and needs faced by family members, enhance their experience of care, improve their quality of life, and help the patients and family members to better pass through the stage of moderate-to-severe disease.