How ready are endocrine scientists to share retrospective clinical data for research: a perspective from the European Network for the Study of Adrenal Tumors
In the absence of dedicated funding for retrospective research, current requirements for data sharing are obstacles.
Authors
- Amar Laurence
- Maria Mavromati (ORCID: https://orcid.org/0000-0003-3085-2928)
- Antoine Neuraz (ORCID: https://orcid.org/0000-0001-7142-6728)
- Massimo Terzolo (ORCID: https://orcid.org/0000-0002-4171-2851)
- Bruno Lapauw (ORCID: https://orcid.org/0000-0002-1584-4965)
- Christina Pamporaki (ORCID: https://orcid.org/0000-0003-0772-1604)
- Eva Ortega‐Paino
- Ambroziak Urszula
- Frédéric Castinetti (ORCID: https://orcid.org/0000-0002-1808-8800)
- Anthony Stell (ORCID: https://orcid.org/0000-0003-4819-9883)
- В. Н. Васильев (ORCID: https://orcid.org/0000-0001-5572-926X)
- Timo Deutschbein (ORCID: https://orcid.org/0000-0003-0586-0168)
- Salvatore Cannavò (ORCID: https://orcid.org/0000-0001-8779-7283)
- Lorina Vudu (ORCID: https://orcid.org/0000-0002-7481-3843)
- Mehmet Muhittin Yalçın (ORCID: https://orcid.org/0000-0002-1041-6881)
- Joakim Crona (ORCID: https://orcid.org/0000-0003-0677-4894)
- Knut Mai (ORCID: https://orcid.org/0000-0003-0126-3155)
- Tomáš Zelinka (ORCID: https://orcid.org/0000-0003-3395-8373)
- Felix Beuschlein (ORCID: https://orcid.org/0000-0001-7826-3984)
- Martin Faßnacht (ORCID: https://orcid.org/0000-0001-6170-6398)
- Michaela Luconi (ORCID: https://orcid.org/0000-0001-5186-064X)
- Esther Osher (ORCID: https://orcid.org/0000-0002-1041-3242)
- Antonio Stigliano (ORCID: https://orcid.org/0000-0002-7143-0775)
- Elif Kılıç Delice (ORCID: https://orcid.org/0000-0002-3051-0496)
- Guillaume Assié (ORCID: https://orcid.org/0000-0001-9590-0906)
- Stefan Pilz (ORCID: https://orcid.org/0000-0002-7959-1311)
- Fátima Al‐Shahrour (ORCID: https://orcid.org/0000-0003-2373-769X)
- Pedro Souteiro (ORCID: https://orcid.org/0000-0002-1359-814X)
- Stylianos Tsagarakis (ORCID: https://orcid.org/0000-0003-1959-8738)
- Koen M.A. Dreijerink (ORCID: https://orcid.org/0000-0002-3140-3502)
- Judith Favier (ORCID: https://orcid.org/0000-0001-8190-5853)
- Christophe De Block (ORCID: https://orcid.org/0000-0002-0679-3203)
- Vallo Volke (ORCID: https://orcid.org/0000-0002-1753-3108)
- Valentina Velkoska Nakova (ORCID: https://orcid.org/0009-0003-5669-9033)
- Ljiljana Marina (ORCID: https://orcid.org/0000-0003-2664-3664)
- Patrick Pétrossians (ORCID: https://orcid.org/0000-0003-0271-136X)
- Bastien Rance (ORCID: https://orcid.org/0000-0003-4417-1197)
- Valentina Morelli
- Richard Abraham Feelders (ORCID: https://orcid.org/0000-0003-2319-391X)
- Anela Novak
- Mark Gruppetta (ORCID: https://orcid.org/0000-0002-5627-6511)
- Maria Chiara Zatelli (ORCID: https://orcid.org/0000-0001-8408-7796)
- Marta Araujo‐Castro (ORCID: https://orcid.org/0000-0002-0519-0072)
- Dimitra A. Vassiliadi (ORCID: https://orcid.org/0000-0002-3403-8977)
- Züleyha Karaca (ORCID: https://orcid.org/0000-0003-3241-2352)
- Tomaž Kocjan (ORCID: https://orcid.org/0000-0001-8606-6825)
- Péter Igaz (ORCID: https://orcid.org/0000-0003-2192-554X)
- Anna L. Mitchell (ORCID: https://orcid.org/0000-0002-9946-183X)
- Cristina Lamas (ORCID: https://orcid.org/0000-0003-4622-9508)
- María Isabel Del Olmo-García (ORCID: https://orcid.org/0000-0002-4278-2624)
- Andreas Muth (ORCID: https://orcid.org/0000-0003-0857-1521)
- Mercedes Robledo (ORCID: https://orcid.org/0000-0001-6256-5902)
- Kristina Semeniene
- Anja Barač Nekić (ORCID: https://orcid.org/0000-0003-2672-8529)
- Necat Yılmaz (ORCID: https://orcid.org/0000-0002-3865-9156)
- Antoan Stefan Šojat (ORCID: https://orcid.org/0000-0003-0048-1265)
- Aleksander Prejbisz (ORCID: https://orcid.org/0000-0001-7085-0244)
- Monica Livia Gheorghiu (ORCID: https://orcid.org/0000-0002-1754-5619)
- Bogdan Dugic
- Stefan Bilz (ORCID: https://orcid.org/0000-0002-7716-2791)
- Paul Carroll (ORCID: https://orcid.org/0000-0002-6834-1093)
- Camilla Schalin‐Jäntti (ORCID: https://orcid.org/0000-0002-2428-0161)
- Marek Bolanowski (ORCID: https://orcid.org/0000-0002-2360-6596)
- Stelios Tigas (ORCID: https://orcid.org/0000-0001-7325-8983)
- Kirstine Stochholm (ORCID: https://orcid.org/0000-0002-4408-3413)
- Duarte Pignatelli (ORCID: https://orcid.org/0000-0002-5555-7004)
- Ante Mandić (ORCID: https://orcid.org/0000-0002-2524-6387)
- Jochen Schneider (ORCID: https://orcid.org/0000-0002-0300-0159)
- Cvetanka Volkanovska Ilijevska
- Alev Selek (ORCID: https://orcid.org/0000-0002-0646-8697)
- Felicia A. Hanzu (ORCID: https://orcid.org/0000-0002-2399-4023)
- Emir M. Muzurović (ORCID: https://orcid.org/0000-0003-2022-3298)
- Marcus Quinkler (ORCID: https://orcid.org/0000-0003-4028-1671)
- Enzo Lalli (ORCID: https://orcid.org/0000-0002-0584-5681)
- Darko Kaštelan (ORCID: https://orcid.org/0000-0003-3034-5598)
- Ola Lindgren (ORCID: https://orcid.org/0000-0002-8780-6255)
- Michael O’Reilly (ORCID: https://orcid.org/0000-0002-9108-9105)
- Hélène Lassole
- Marta Ferreira (ORCID: https://orcid.org/0000-0002-6298-2404)
- Cristina Preda (ORCID: https://orcid.org/0000-0002-4794-5349)
- Henri Timmers
- David Gill
- Anita Burgun
- María‐Dolores Chiara (ORCID: https://orcid.org/0000-0002-1112-1583)
- Corin Badeu
- Adam Safwaan
- Olja Ulicni Niksic
- Dorina Yill
- Thierry Vermeeren
Institutions
- Semmelweis University (HU)
- University Hospital Centre Zagreb (HR)
- Inserm (FR)
- The University of Melbourne (AU)
- University of Zagreb (HR)
- University of Zurich (CH)
- Université Paris Cité (FR)
- University of Würzburg (DE)
- Instituto de Salud Carlos III (ES)
- LMU Klinikum (DE)
- University of Belgrade (RS)
- Spanish National Cancer Research Centre (ES)
- Sorbonne Paris Cité (FR)
- Centre de Recherche des Cordeliers (FR)
- Hôpital Cochin (FR)
- Assistance Publique – Hôpitaux de Paris (FR)
- University Hospital of Zurich (CH)
- Centre for Biomedical Network Research on Rare Diseases (ES)
- Univerzitetski Klinički Centar Srbije (RS)
- Istituto Nazionale di Documentazione Innovazione e Ricerca Educativa (IT)
- Universitätsklinikum Würzburg (DE)
- Institut Cochin (FR)
- Cancer Genetics (United States) (US)
- Research Network (United States) (US)
- Evangelismos Hospital (GR)
- University of Florence (IT)
- Ludwig-Maximilians-Universität München (DE)
Publication Details
- Journal
- European Journal of Endocrinology
- Published
- 2025-03-27
- DOI
- https://doi.org/10.1093/ejendo/lvaf005
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- European Cooperation in Science and Technology