How ready are endocrine scientists to share retrospective clinical data for research: a perspective from the European Network for the Study of Adrenal Tumors

In the absence of dedicated funding for retrospective research, current requirements for data sharing are obstacles.

Authors

Institutions

Publication Details

Journal
European Journal of Endocrinology
Published
2025-03-27
DOI
https://doi.org/10.1093/ejendo/lvaf005
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
0.00

Funders

Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

How ready are endocrine scientists to share retrospective clinical data for research: a perspective from the European Network for the Study of Adrenal Tumors

Amar Laurence, Maria Mavromati, Antoine Neuraz, Massimo Terzolo et al.
European Journal of Endocrinology
Ethics in Clinical Research
article

How ready are endocrine scientists to share retrospective clinical data for research: a perspective from the European Network for the Study of Adrenal Tumors

Amar Laurence, Maria Mavromati, Antoine Neuraz, Massimo Terzolo, Bruno Lapauw, Christina Pamporaki, Eva Ortega‐Paino, Ambroziak Urszula, Frédéric Castinetti, Anthony Stell, В. Н. Васильев, Timo Deutschbein, Salvatore Cannavò, Lorina Vudu, Mehmet Muhittin Yalçın, Joakim Crona, Knut Mai, Tomáš Zelinka, Felix Beuschlein, Martin Faßnacht, Michaela Luconi, Esther Osher, Antonio Stigliano, Elif Kılıç Delice, Guillaume Assié, Stefan Pilz, Fátima Al‐Shahrour, Pedro Souteiro, Stylianos Tsagarakis, Koen M.A. Dreijerink, Judith Favier, Christophe De Block, Vallo Volke, Valentina Velkoska Nakova, Ljiljana Marina, Patrick Pétrossians, Bastien Rance, Valentina Morelli, Richard Abraham Feelders, Anela Novak, Mark Gruppetta, Maria Chiara Zatelli, Marta Araujo‐Castro, Dimitra A. Vassiliadi, Züleyha Karaca, Tomaž Kocjan, Péter Igaz, Anna L. Mitchell, Cristina Lamas, María Isabel Del Olmo-García, Andreas Muth, Mercedes Robledo, Kristina Semeniene, Anja Barač Nekić, Necat Yılmaz, Antoan Stefan Šojat, Aleksander Prejbisz, Monica Livia Gheorghiu, Bogdan Dugic, Stefan Bilz, Paul Carroll, Camilla Schalin‐Jäntti, Marek Bolanowski, Stelios Tigas, Kirstine Stochholm, Duarte Pignatelli, Ante Mandić, Jochen Schneider, Cvetanka Volkanovska Ilijevska, Alev Selek, Felicia A. Hanzu, Emir M. Muzurović, Marcus Quinkler, Enzo Lalli, Darko Kaštelan, Ola Lindgren, Michael O’Reilly, Hélène Lassole, Marta Ferreira, Cristina Preda, Henri Timmers, David Gill, Anita Burgun, María‐Dolores Chiara, Corin Badeu, Adam Safwaan, Olja Ulicni Niksic, Dorina Yill, Thierry Vermeeren
article en

Abstract

In the absence of dedicated funding for retrospective research, current requirements for data sharing are obstacles.

European Journal of EndocrinologyVol. 192(4)
Semmelweis University (HU), University Hospital Centre Zagreb (HR), Inserm (FR), The University of Melbourne (AU), University of Zagreb (HR), University of Zurich (CH), Université Paris Cité (FR), University of Würzburg (DE), Instituto de Salud Carlos III (ES), LMU Klinikum (DE), University of Belgrade (RS), Spanish National Cancer Research Centre (ES), Sorbonne Paris Cité (FR), Centre de Recherche des Cordeliers (FR), Hôpital Cochin (FR), Assistance Publique – Hôpitaux de Paris (FR), University Hospital of Zurich (CH), Centre for Biomedical Network Research on Rare Diseases (ES), Univerzitetski Klinički Centar Srbije (RS), Istituto Nazionale di Documentazione Innovazione e Ricerca Educativa (IT), Universitätsklinikum Würzburg (DE), Institut Cochin (FR), Cancer Genetics (United States) (US), Research Network (United States) (US), Evangelismos Hospital (GR), University of Florence (IT), Ludwig-Maximilians-Universität München (DE)
European Cooperation in Science and Technology
Partnerships for the goals
Openalex Percentile: Top 88%
Ethics in Clinical Research
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.