Caregivers of Children With Medical Complexity: A Qualitative Study of Their Adaptation
This study identified emotional, practical, and social processes that helped our group of CMC caregivers adapt to caregiving. Our findings indicate that interventions likely to enhance caregiver adaptation could involve supporting caregivers to find acceptance and meaning, create caregiving systems, and develop coping strategies.
Authors
- Suzannah Iadarola (ORCID: https://orcid.org/0000-0001-6828-8379)
- Jori F. Bogetz (ORCID: https://orcid.org/0000-0002-5488-4505)
- Christie L. M. Petrenko (ORCID: https://orcid.org/0000-0003-2091-3686)
- Thomas G. O’Connor (ORCID: https://orcid.org/0000-0002-8590-5057)
- Reza Yousefi Nooraie (ORCID: https://orcid.org/0000-0002-9002-7121)
- Jan Schriefer (ORCID: https://orcid.org/0000-0002-0470-1934)
- Dennis Z. Kuo (ORCID: https://orcid.org/0009-0008-6143-5768)
- Justin A. Yu (ORCID: https://orcid.org/0000-0002-2769-8344)
- Jennifer A. Johnson (ORCID: https://orcid.org/0000-0001-7258-1834)
- Nathaniel D. Bayer
- Jill S. Halterman
- Kathleen D. Krieg
Institutions
- University of Pittsburgh (US)
- University of Washington (US)
- Golisano Children's Hospital (US)
- Children's Hospital of Pittsburgh (US)
- University of Rochester (US)
Publication Details
- Journal
- Hospital Pediatrics
- Published
- 2025-04-27
- DOI
- https://doi.org/10.1542/hpeds.2024-008066
- Citations
- 1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.49