Team Science in Precision Medicine Research:The Case for Inclusion of Adults With Intellectual Disability

The inclusion of adults with intellectual disability (ID) in precision medicine research has scientific, public health, and social justice justifications. Yet there is an indication that this population is excluded from general (i.e., nondisability specific) health research, including precision medicine research. Adults with ID are thus unlikely to reap the benefits emerging from such scientific endeavors-today and in the future. In this commentary, we explore key issues in research ethics, including cohort diversity, the principle of justice, and consent, and discuss their ramifications for adults with ID and precision medicine researchers. We call for endorsing team science collaboration and community engagement to promote health equity for adults with ID and disability justice in precision medicine research.

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Publication Details

Journal
American Journal on Intellectual and Developmental Disabilities
Published
2025-04-27
DOI
https://doi.org/10.1352/1944-7558-130.3.171
Primary Topic
Adolescent and Pediatric Healthcare
Type
article
Field-Weighted Citation Impact
0.00
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article

Team Science in Precision Medicine Research:The Case for Inclusion of Adults With Intellectual Disability

Maya Sabatello, Katherine McDonald
American Journal on Intellectual and Developmental Disabilities
Adolescent and Pediatric Healthcare
article

Team Science in Precision Medicine Research:The Case for Inclusion of Adults With Intellectual Disability

Maya Sabatello, Katherine McDonald
article en

Abstract

The inclusion of adults with intellectual disability (ID) in precision medicine research has scientific, public health, and social justice justifications. Yet there is an indication that this population is excluded from general (i.e., nondisability specific) health research, including precision medicine research. Adults with ID are thus unlikely to reap the benefits emerging from such scientific endeavors-today and in the future. In this commentary, we explore key issues in research ethics, including cohort diversity, the principle of justice, and consent, and discuss their ramifications for adults with ID and precision medicine researchers. We call for endorsing team science collaboration and community engagement to promote health equity for adults with ID and disability justice in precision medicine research.

American Journal on Intellectual and Developmental DisabilitiesVol. 130(3)
Syracuse University (US), Columbia University (US)
Reduced inequalities
Openalex Percentile: Top 88%
Adolescent and Pediatric Healthcare
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