Registries for bronchiectasis in the world: an opportunity for international collaboration

Until relatively recently, bronchiectasis (not due to cystic fibrosis) was considered an orphan disease, lacking clinical and commercial interest, and was rarely diagnosed. Since the 2000s, several working groups have emerged in Europe and the US - with the first register for bronchiectasis launching in Spain - and these have demonstrated the impact bronchiectasis has on health. Today, bronchiectasis is considered the third most common chronic inflammatory disease of the airways, after COPD and asthma, and represents a significant economic burden. We make the case for further characterization of these registries to better understand the heterogeneous epidemiology of bronchiectasis.

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Publication Details

Journal
The International Journal of Tuberculosis and Lung Disease
Published
2025-04-25
DOI
https://doi.org/10.5588/ijtld.25.0157
Citations
8
Primary Topic
Cystic Fibrosis Research Advances
Type
article
Field-Weighted Citation Impact
12.15
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article

Registries for bronchiectasis in the world: an opportunity for international collaboration

David de la Rosa, Miguel Ángel Martínez‐García, Grace Oscullo, Amina Bekki
8 citations
The International Journal of Tuberculosis and Lung Disease
Cystic Fibrosis Research Advances
12.15
article

Registries for bronchiectasis in the world: an opportunity for international collaboration

David de la Rosa, Miguel Ángel Martínez‐García, Grace Oscullo, Amina Bekki
article en
8 citations

Abstract

Until relatively recently, bronchiectasis (not due to cystic fibrosis) was considered an orphan disease, lacking clinical and commercial interest, and was rarely diagnosed. Since the 2000s, several working groups have emerged in Europe and the US - with the first register for bronchiectasis launching in Spain - and these have demonstrated the impact bronchiectasis has on health. Today, bronchiectasis is considered the third most common chronic inflammatory disease of the airways, after COPD and asthma, and represents a significant economic burden. We make the case for further characterization of these registries to better understand the heterogeneous epidemiology of bronchiectasis.

The International Journal of Tuberculosis and Lung DiseaseVol. 29(5)
Instituto de Salud Carlos III (ES), Centro de Investigación Biomédica en Red de Enfermedades Respiratorias (ES)
Partnerships for the goals
Openalex Percentile: Top 1%
Cystic Fibrosis Research Advances
12.15
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Registries for bronchiectasis in the world: an opportunity for international collaboration — David de la Rosa, Miguel Ángel Martínez‐García, et al. · The International Journal of Tuberculosis and Lung Disease (2025) | TGRS Research Map | TGRS