Registries for bronchiectasis in the world: an opportunity for international collaboration
Until relatively recently, bronchiectasis (not due to cystic fibrosis) was considered an orphan disease, lacking clinical and commercial interest, and was rarely diagnosed. Since the 2000s, several working groups have emerged in Europe and the US - with the first register for bronchiectasis launching in Spain - and these have demonstrated the impact bronchiectasis has on health. Today, bronchiectasis is considered the third most common chronic inflammatory disease of the airways, after COPD and asthma, and represents a significant economic burden. We make the case for further characterization of these registries to better understand the heterogeneous epidemiology of bronchiectasis.
Authors
- David de la Rosa (ORCID: https://orcid.org/0000-0003-0753-1771)
- Miguel Ángel Martínez‐García (ORCID: https://orcid.org/0000-0002-7321-1891)
- Grace Oscullo (ORCID: https://orcid.org/0000-0002-2121-7554)
- Amina Bekki (ORCID: https://orcid.org/0000-0001-7121-8726)
Institutions
- Instituto de Salud Carlos III (ES)
- Centro de Investigación Biomédica en Red de Enfermedades Respiratorias (ES)
Publication Details
- Journal
- The International Journal of Tuberculosis and Lung Disease
- Published
- 2025-04-25
- DOI
- https://doi.org/10.5588/ijtld.25.0157
- Citations
- 8
- Primary Topic
- Cystic Fibrosis Research Advances
- Type
- article
- Field-Weighted Citation Impact
- 12.15