The lived experiences of families with children with autism in creating an inclusive society: “my child’s disability is not for your emotional satisfaction!”

This study examines the experiences, emotions and expectations of parents of children with autism spectrum disorders (ASD) in fostering an inclusive society. This study aims to investigate how families of children with ASD perceive and experience inclusive practices and societal attitudes. Qualitative data were collected from 10 families in T & uuml;rkiye through diaries for two months and semi-structured interviews. The findings reveal key barriers, including societal stigma, insufficient educator training, and resource limitations, which impede inclusive education. Emotionally, families confront grief, resilience, and hope, often drawing strength from cultural and spiritual practices. They call for social empathy, equitable education access, and long-term support to enable independence for their children. The study contributes to social exclusion theory and urges policymakers and educators to implement reforms promoting equity, empathy, and sustainable inclusion.

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Publication Details

Journal
International Journal of Developmental Disabilities
Published
2025-04-24
DOI
https://doi.org/10.1080/20473869.2025.2495709
Citations
1
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
2.31
Controls
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article

The lived experiences of families with children with autism in creating an inclusive society: “my child’s disability is not for your emotional satisfaction!”

Mukaddes Sakallı Demirok, Mehmet Isik
1 citations
International Journal of Developmental Disabilities
Family and Disability Support Research
2.31
article

The lived experiences of families with children with autism in creating an inclusive society: “my child’s disability is not for your emotional satisfaction!”

Mukaddes Sakallı Demirok, Mehmet Isik
article en
1 citations

Abstract

This study examines the experiences, emotions and expectations of parents of children with autism spectrum disorders (ASD) in fostering an inclusive society. This study aims to investigate how families of children with ASD perceive and experience inclusive practices and societal attitudes. Qualitative data were collected from 10 families in T & uuml;rkiye through diaries for two months and semi-structured interviews. The findings reveal key barriers, including societal stigma, insufficient educator training, and resource limitations, which impede inclusive education. Emotionally, families confront grief, resilience, and hope, often drawing strength from cultural and spiritual practices. They call for social empathy, equitable education access, and long-term support to enable independence for their children. The study contributes to social exclusion theory and urges policymakers and educators to implement reforms promoting equity, empathy, and sustainable inclusion.

International Journal of Developmental Disabilities
Atatürk University (TR), Near East University (CY)
Reduced inequalities
Openalex Percentile: Top 15%
Family and Disability Support Research
2.31
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