Co-creation and evaluation of online care maps for children with medical complexity
An online care map creation tool was co-developed with caregivers and CTMs for CMC. Caregivers and CTMs appreciated online care maps as an organizational, coordination, and communication tool, providing an enhanced understanding of the complexity of care, a holistic view of the child, and guiding care discussions. Some caregivers did not use the care map due to a perceived lack of value or redundancy. Future research should explore the integration of care maps into electronic medical records and care pathways and evaluate the impact on clinical outcomes.
Authors
- Julia Orkin (ORCID: https://orcid.org/0000-0002-4969-2496)
- Sherri Adams (ORCID: https://orcid.org/0000-0002-1095-0101)
- Eyal Cohen (ORCID: https://orcid.org/0000-0001-9877-8467)
- Madison Beatty (ORCID: https://orcid.org/0000-0002-8893-2763)
- Arti D. Desai (ORCID: https://orcid.org/0000-0001-7596-8479)
- Clara Moore (ORCID: https://orcid.org/0000-0002-6588-8480)
- Erin Culbert (ORCID: https://orcid.org/0000-0003-2867-4552)
- Leah Bartlett (ORCID: https://orcid.org/0000-0001-5641-5262)
- Jennifer Nan Stinson (ORCID: https://orcid.org/0000-0002-9969-8052)
- Blossom Dharmaraj
Institutions
- University of Toronto (CA)
- University of Washington (US)
- Royal Victoria Regional Health Centre (CA)
- Hospital for Sick Children (CA)
- Credit Valley Hospital (CA)
- SickKids Foundation (CA)
- Institute for Clinical Evaluative Sciences (CA)
- McMaster University (CA)
Publication Details
- Journal
- BMC Pediatrics
- Published
- 2025-04-25
- DOI
- https://doi.org/10.1186/s12887-025-05679-5
- Primary Topic
- Mobile Health and mHealth Applications
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Government of Ontario
- Ontario Centre of Innovation