Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal

<b>Background/Objectives:</b> Informal caregivers (ICs) are the backbone of home-based palliative care (PC) because they play a vital role in offering more seamless and timely support, preventing suffering and fostering comfort and dignity. Specialized home-based PC teams must recognize ICs' unmet needs in fulfilling daily responsibilities and enhance their preparedness for caring. In this vein, this study aimed to carry out the following: (a) explore how PC professionals perceive the preparedness of ICs to provide PC at home and (b) determine what barriers and enablers they consider essential for the delivery of high-quality PC at home. <b>Methods:</b> Using purposeful sampling, thirty-four professionals from four disciplines who worked in specialized PC teams were recruited for a descriptive qualitative research study. Four focus group discussions were conducted from September 2024 to January 2025. This was followed by a thematic analysis according to Braun and Clarke's framework. The findings are reported following the COREQ checklist. <b>Results:</b> Most of the participants were female nurses (<i>n</i> = 22) with a mean age of 41.8 ± 8.62 years. Three overarching themes were identified: (1) IC needs and motivations for providing care; (2) perceived barriers to good-quality palliative home care; and (3) perceived enablers of good-quality palliative home care. The IC's preparedness depends on personal characteristics, health status, the scope of tasks, and the ramifications stemming from the complexity of the illness trajectory. <b>Conclusions:</b> Professionals deemed it essential for PC staff to be experienced, accessible, person-centered, and proactive. Furthermore, effective communication and a well-defined network for requesting certain community resources or services were deemed crucial for delivering high-quality PC at home.

Authors

Institutions

Publication Details

Journal
Healthcare
Published
2025-04-23
DOI
https://doi.org/10.3390/healthcare13090978
Citations
2
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
Field-Weighted Citation Impact
3.76
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal

Carlos Laranjeira, Ana Querido, Laura Faustino Gonçalves, Vanessa Marrazes
2 citations
Healthcare
Palliative Care and End-of-Life Issues
3.76
article

Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal

Carlos Laranjeira, Ana Querido, Laura Faustino Gonçalves, Vanessa Marrazes
article en
2 citations

Abstract

<b>Background/Objectives:</b> Informal caregivers (ICs) are the backbone of home-based palliative care (PC) because they play a vital role in offering more seamless and timely support, preventing suffering and fostering comfort and dignity. Specialized home-based PC teams must recognize ICs' unmet needs in fulfilling daily responsibilities and enhance their preparedness for caring. In this vein, this study aimed to carry out the following: (a) explore how PC professionals perceive the preparedness of ICs to provide PC at home and (b) determine what barriers and enablers they consider essential for the delivery of high-quality PC at home. <b>Methods:</b> Using purposeful sampling, thirty-four professionals from four disciplines who worked in specialized PC teams were recruited for a descriptive qualitative research study. Four focus group discussions were conducted from September 2024 to January 2025. This was followed by a thematic analysis according to Braun and Clarke's framework. The findings are reported following the COREQ checklist. <b>Results:</b> Most of the participants were female nurses (<i>n</i> = 22) with a mean age of 41.8 ± 8.62 years. Three overarching themes were identified: (1) IC needs and motivations for providing care; (2) perceived barriers to good-quality palliative home care; and (3) perceived enablers of good-quality palliative home care. The IC's preparedness depends on personal characteristics, health status, the scope of tasks, and the ramifications stemming from the complexity of the illness trajectory. <b>Conclusions:</b> Professionals deemed it essential for PC staff to be experienced, accessible, person-centered, and proactive. Furthermore, effective communication and a well-defined network for requesting certain community resources or services were deemed crucial for delivering high-quality PC at home.

HealthcareVol. 13(9)
Instituto Politécnico de Leiria (PT), Universidade do Porto (PT), University of Évora (PT)
Gender equality
Openalex Percentile: Top 8%
Palliative Care and End-of-Life Issues
3.76
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.