Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal
<b>Background/Objectives:</b> Informal caregivers (ICs) are the backbone of home-based palliative care (PC) because they play a vital role in offering more seamless and timely support, preventing suffering and fostering comfort and dignity. Specialized home-based PC teams must recognize ICs' unmet needs in fulfilling daily responsibilities and enhance their preparedness for caring. In this vein, this study aimed to carry out the following: (a) explore how PC professionals perceive the preparedness of ICs to provide PC at home and (b) determine what barriers and enablers they consider essential for the delivery of high-quality PC at home. <b>Methods:</b> Using purposeful sampling, thirty-four professionals from four disciplines who worked in specialized PC teams were recruited for a descriptive qualitative research study. Four focus group discussions were conducted from September 2024 to January 2025. This was followed by a thematic analysis according to Braun and Clarke's framework. The findings are reported following the COREQ checklist. <b>Results:</b> Most of the participants were female nurses (<i>n</i> = 22) with a mean age of 41.8 ± 8.62 years. Three overarching themes were identified: (1) IC needs and motivations for providing care; (2) perceived barriers to good-quality palliative home care; and (3) perceived enablers of good-quality palliative home care. The IC's preparedness depends on personal characteristics, health status, the scope of tasks, and the ramifications stemming from the complexity of the illness trajectory. <b>Conclusions:</b> Professionals deemed it essential for PC staff to be experienced, accessible, person-centered, and proactive. Furthermore, effective communication and a well-defined network for requesting certain community resources or services were deemed crucial for delivering high-quality PC at home.
Authors
- Carlos Laranjeira (ORCID: https://orcid.org/0000-0003-1080-9535)
- Ana Querido (ORCID: https://orcid.org/0000-0002-5021-773X)
- Laura Faustino Gonçalves (ORCID: https://orcid.org/0000-0002-0043-4349)
- Vanessa Marrazes
Institutions
- Instituto Politécnico de Leiria (PT)
- Universidade do Porto (PT)
- University of Évora (PT)
Publication Details
- Journal
- Healthcare
- Published
- 2025-04-23
- DOI
- https://doi.org/10.3390/healthcare13090978
- Citations
- 2
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 3.76