Insights into healthcare services for youth with autism spectrum disorder transitioning to adulthood: a focus on rural Atlantic Canada

Individuals with neurodevelopmental disabilities, such as autism spectrum disorder (ASD) often require unique healthcare services. As adolescents age out of the pediatric health system, accessing appropriate healthcare becomes more challenging during the transition to adulthood. This challenge is amplified for individuals with ASD living in rural areas where access to healthcare services is limited. The aim of this qualitative study was to explore the experiences of stakeholders, including individuals with ASD, parents of individuals with ASD, and service providers, during the transition to adulthood in rural communities. MethodsWe recruited 26 individuals including 16 youth, 6 parents and 4 service providers through convenience and snowball sampling methods from Canadian Atlantic provinces. Semi-structured interviews were conducted, focusing on barriers and challenges encountered during the transition.ResultsThematic analysis was employed to identify patterns and themes within the data. Three central themes emerged from the data including transport to and from care, limited resources, and continuity of care.ConclusionThe findings underscore the significant challenges faced by individuals with ASD and their families during the transition to adulthood in rural areas. By understanding and addressing these challenges, stakeholders can work towards implementing informed policies to ensure equitable access to healthcare services for individuals with ASD transitioning to adulthood in rural areas.