Recruitment rate comparison between a virtual tele-research cohort and a traditional centre-based cohort in idiopathic inflammatory myopathy
The decentralized TRC demonstrated higher recruitment and enrolment, with similar compliance and retention rates compared with CBC. Decentralized approaches offer promise for rare diseases with recruitment challenges.
Authors
- Gail Douglas (ORCID: https://orcid.org/0000-0002-0531-3909)
- Ho Bing Oei
- Joseph C. Shanahan
- Prahlad Reddy
- Kristin M. D’Silva (ORCID: https://orcid.org/0000-0001-8370-4166)
- Kenneth Crager
- Joe Kelley
- Matthew Jefferies
- E. Matthew Hoffman (ORCID: https://orcid.org/0000-0001-7293-8290)
- Aarat Patel (ORCID: https://orcid.org/0000-0002-9756-2274)
- Douglas White
- Jeremy J. Murdock
- Sharon Nations (ORCID: https://orcid.org/0000-0002-4768-4185)
- Michelle Morris (ORCID: https://orcid.org/0000-0002-9325-619X)
- Shifeng Wu (ORCID: https://orcid.org/0000-0003-0630-8260)
- Rohit Aggarwal (ORCID: https://orcid.org/0000-0001-7531-8038)
- Lauren K. King (ORCID: https://orcid.org/0000-0002-4721-5696)
- Donald C. Martin
- Daniel Jacobs
- Carrie Richardson (ORCID: https://orcid.org/0000-0002-2541-175X)
- Shalini Mahajan (ORCID: https://orcid.org/0000-0002-5304-4766)
- Conor McCormick (ORCID: https://orcid.org/0000-0001-8799-8915)
- S. Cowan (ORCID: https://orcid.org/0000-0002-8900-5873)
- Teerin Liewluck (ORCID: https://orcid.org/0000-0002-0212-5697)
- Victoria P. Werth (ORCID: https://orcid.org/0000-0003-3030-5369)
- Judy Huang (ORCID: https://orcid.org/0000-0002-0675-1935)
- Janet Kim
- Sarah Coleman (ORCID: https://orcid.org/0000-0003-3393-6764)
- Raphael I. Kieval
- R. Greene
- Anushka Aggarwal (ORCID: https://orcid.org/0000-0003-3094-0215)
- Swamy R. Venuturupalli
- Brittany L. Adler (ORCID: https://orcid.org/0000-0001-9912-2435)
- Daphne Scaramangas-Plumley
- Maurizio Leone (ORCID: https://orcid.org/0000-0002-6339-5738)
- Eleni Tiniakou (ORCID: https://orcid.org/0000-0003-4749-870X)
- Nishant Gupta (ORCID: https://orcid.org/0000-0001-9112-1315)
- Christine Chhakchhuak
- Tina Shah (ORCID: https://orcid.org/0000-0001-7724-7210)
- Julie J. Paik (ORCID: https://orcid.org/0000-0001-8436-1601)
- Kanchana Herath
- Mark Riley (ORCID: https://orcid.org/0000-0002-1914-144X)
- Surabhi Khanna (ORCID: https://orcid.org/0000-0002-1980-5648)
- Shiri Keret (ORCID: https://orcid.org/0000-0002-8680-4661)
- Jeffrey P. Callen (ORCID: https://orcid.org/0009-0000-8478-4161)
- Kara Steijlen
- Sheetal Shroff (ORCID: https://orcid.org/0000-0002-6317-4951)
- Marc Quinn
- Robert Kalish (ORCID: https://orcid.org/0000-0002-1638-4243)
- Jonathan Leffert
- Chester V. Oddis (ORCID: https://orcid.org/0000-0002-9529-3111)
- Kate Newman
- Naveed Sami (ORCID: https://orcid.org/0000-0003-4141-9468)
- Victor Chen (ORCID: https://orcid.org/0000-0002-5247-3139)
- Yadira Velazquez-Rodriguez
- Andy M. Williams (ORCID: https://orcid.org/0000-0001-6756-2751)
- Shih‐Pei Shen
- Carl Henderson (ORCID: https://orcid.org/0000-0001-9563-6623)
- Shazia Bég
- Siamak Moghadam‐Kia (ORCID: https://orcid.org/0000-0002-0994-1590)
- Vernon Berglund
- H. J. Kramer
- Mark H. Thelen
- Jocelyn Vine (ORCID: https://orcid.org/0000-0003-4736-949X)
- Nantakarn Pongtarakulpanit (ORCID: https://orcid.org/0000-0002-1384-9834)
- Wai Lee (ORCID: https://orcid.org/0000-0001-9883-5409)
- Lin Wang (ORCID: https://orcid.org/0000-0001-7425-7667)
- James J. Curran
- Christopher W. Wright
- B. Culver
- Qaiser Rehman
- M. Pérez
- CHARLES K. MILLS
- James Wilson
- R. L. Bell
- W. Joseph McCune
- Santhosh Skaria
- Rory M. Marks
- Jerrica Farias APRN
- Angela Gierut
- Joseph Enama
- Anna Popazoglou
- Ghaith Nosiseh
- M. Group
- Edward Skol
- Dennis Ozment
- Heather Larabee
- Sandra Elizabeth Bendick
- Hayri Sangiray
- Louis Flaspohler
- Joshua Sundhar
- Georgia Seely
- Emilia Dulgheru
- Laurie Mathie
- M Porter Meadors
- Luiziana Manuela Marinescu
- Sandra Chesoni
- Ruba Barakat Kado Elena Schiopu
- Eric Slavin
- Maya Estephan
- Jessica Baer Mears
- Timothy Gensler
Institutions
- Cedars-Sinai Medical Center (US)
- Indraprastha Apollo Hospitals (IN)
- Johns Hopkins University (US)
- Mahidol University (TH)
- Bon Secours Hospital (US)
- Johns Hopkins Medicine (US)
- Bnai Zion Medical Center (IL)
- University of Pittsburgh Medical Center (US)
- Ramathibodi Hospital (TH)
- Florida Hospital Medical Group (US)
- Center for Rheumatology (US)
- University of Virginia (US)
Publication Details
- Journal
- Lara D. Veeken
- Published
- 2025-04-23
- DOI
- https://doi.org/10.1093/rheumatology/keaf217
- Primary Topic
- Inflammatory Myopathies and Dermatomyositis
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Boehringer Ingelheim
- AstraZeneca
- National Institutes of Health
- National Institute of Arthritis and Musculoskeletal and Skin Diseases