Leveraging Feedback From Autistic Adults to Develop an App to Access Healthcare Services

Abstract Autistic individuals are more likely to have co-occurring healthcare conditions and experience a cascade of health disparities compared to those that are not autistic. While ample research continues to be conducted to decrease these disparities, it is often done without the input from autistic individuals. In this qualitative study, we interviewed 15 autistic participants to explore how a healthcare services app could be adapted for autistic adults. Overall, participants agreed that a healthcare services app specific to autistic adults could be beneficial. In addition, participants provided feedback on healthcare services, filter options, and software features to include in the app. Participants reported what they found to be most valuable within a healthcare services app prototype designed for autistic adults, such as having all healthcare information in one place, receiving support when seeking accommodations from healthcare providers, and accessing resources. Implications for research and practice are discussed.

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Publication Details

Journal
Journal of Developmental and Physical Disabilities
Published
2025-04-23
DOI
https://doi.org/10.1007/s10882-025-10017-9
Primary Topic
Autism Spectrum Disorder Research
Type
article
Field-Weighted Citation Impact
0.00

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article

Leveraging Feedback From Autistic Adults to Develop an App to Access Healthcare Services

Matthew Best, Meghan M. Burke, Sarah Demissie, Saury Ramos‐Torres et al.
1 links
Journal of Developmental and Physical Disabilities
Autism Spectrum Disorder Research
article

Leveraging Feedback From Autistic Adults to Develop an App to Access Healthcare Services

Matthew Best, Meghan M. Burke, Sarah Demissie, Saury Ramos‐Torres, Isabelle Burakov, RaeAnne Lindsay
article en

Abstract

Abstract Autistic individuals are more likely to have co-occurring healthcare conditions and experience a cascade of health disparities compared to those that are not autistic. While ample research continues to be conducted to decrease these disparities, it is often done without the input from autistic individuals. In this qualitative study, we interviewed 15 autistic participants to explore how a healthcare services app could be adapted for autistic adults. Overall, participants agreed that a healthcare services app specific to autistic adults could be beneficial. In addition, participants provided feedback on healthcare services, filter options, and software features to include in the app. Participants reported what they found to be most valuable within a healthcare services app prototype designed for autistic adults, such as having all healthcare information in one place, receiving support when seeking accommodations from healthcare providers, and accessing resources. Implications for research and practice are discussed.

Journal of Developmental and Physical DisabilitiesVol. 38(1)
University of Illinois Urbana-Champaign (US), Vanderbilt University (US)
U.S. Department of Health and Human Services, Health Resources and Services Administration
Openalex Percentile: Top 92%
Autism Spectrum Disorder Research
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Leveraging Feedback From Autistic Adults to Develop an App to Access Healthcare Services — Matthew Best, Meghan M. Burke, et al. · Journal of Developmental and Physical Disabilities (2025) | TGRS Research Map | TGRS