‘But you don’t look sick:’ hypothyroid narratives shared on Instagram

The results indicated that patient-advocates' narrative posts highlight the variance in which hypothyroidism presents, which may contribute to misunderstandings surrounding the condition and others like it in and out of clinical spaces. The choice to use social media to present these messages to the thyroid community and the public is significant because it illustrates the desire for change through a participatory culture mediated through digital activism. Furthermore, using social media presents a way to relay these narratives outside of institutional barriers and rebuke.