Disentangling informing participants from obtaining their consent

Even when researchers are not obtaining participants' consent, communicating information can promote one or more of six important goals. Providing information to participants should thus be the default for trials conducted under a waiver of research consent.

Authors

Institutions

Publication Details

Journal
Learning Health Systems
Published
2025-04-21
DOI
https://doi.org/10.1002/lrh2.70014
Citations
1
Primary Topic
Patient Dignity and Privacy
Type
article
Field-Weighted Citation Impact
1.88

Funders

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article

Disentangling informing participants from obtaining their consent

P. Pearl O'Rourke, James A. Tulsky, Gail D’Onofrio, Julie Goldman et al.
1 citations
Learning Health Systems
Patient Dignity and Privacy
1.88
article

Disentangling informing participants from obtaining their consent

P. Pearl O'Rourke, James A. Tulsky, Gail D’Onofrio, Julie Goldman, Laura M. Dember, Sheana Bull, Joseph Ali, David Magnus, Angelo E. Volandes, Benjamin S. Wilfond, David S. Wendler, Judith Carrithers, P. Michael Ho, Edward R. Melnick, Karen L. Staman, Miguel A. Vázquez
article en
1 citations

Abstract

Even when researchers are not obtaining participants' consent, communicating information can promote one or more of six important goals. Providing information to participants should thus be the default for trials conducted under a waiver of research consent.

Learning Health SystemsVol. 9(4)
Brigham and Women's Hospital (US), Seattle Children's Hospital (US), National Institutes of Health (US), Harvard University (US), Johns Hopkins University (US), Colorado School of Public Health (US), University of Washington (US), Hospital of the University of Pennsylvania (US), Yale University (US), Massachusetts General Hospital (US), Clinical Research Institute (US), Johns Hopkins Berman Institute of Bioethics (US), Dana-Farber Cancer Institute (US), VA Eastern Colorado Health Care System (US), Health Decisions (United States) (US), University of Colorado Anschutz Medical Campus (US), University of Pennsylvania (US), The University of Texas Southwestern Medical Center (US), Stanford University (US)
National Institute of Diabetes and Digestive and Kidney Diseases, National Center for Complementary and Integrative Health
Peace, Justice and strong institutions
Openalex Percentile: Top 17%
Patient Dignity and Privacy
1.88
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