A novel child-centred core palliative care outcome measure for use in clinical practice and research: findings from a multinational validation study
The C-POS has good psychometric properties. To further improve the measure, we identified items for potential removal, conceptual gaps that should be addressed and domains for which developmental age-appropriate items are needed. C-POS has potential to evaluate and improve person-centred children's palliative care in research and routine clinical practice.
Authors
- Lorna Fraser (ORCID: https://orcid.org/0000-0002-1360-4191)
- Fliss EM Murtagh (ORCID: https://orcid.org/0000-0003-1289-3726)
- Mackuline Atieno
- Faith Mwangi-Powell
- Zipporah Ali (ORCID: https://orcid.org/0000-0003-3643-0304)
- Michelle Meiring (ORCID: https://orcid.org/0000-0002-2891-3261)
- Margaret Sandham (ORCID: https://orcid.org/0000-0001-7487-9706)
- Eve Namisango (ORCID: https://orcid.org/0000-0001-5032-4714)
- Katherine Bristowe (ORCID: https://orcid.org/0000-0003-1809-217X)
- Julia D Downing (ORCID: https://orcid.org/0000-0002-3450-785X)
- Richard A. Powell
- Irene J Higginson (ORCID: https://orcid.org/0000-0002-3687-1313)
- Richard Harding (ORCID: https://orcid.org/0000-0001-9653-8689)
- Melanie Abbas
Institutions
- King's College London (GB)
- African Palliative Care Association (UG)
- Public Health England (GB)
- Cicely Saunders International (GB)
- Red Cross War Memorial Children's Hospital (ZA)
- Massey University (NZ)
- Hull York Medical School (GB)
- Makerere University (UG)
- University of KwaZulu-Natal (ZA)
Publication Details
- Journal
- Health and Quality of Life Outcomes
- Published
- 2025-04-21
- DOI
- https://doi.org/10.1186/s12955-025-02346-2
- Citations
- 1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.49