Multicenter Improvement in Screening for Dystonia in Young People With Cerebral Palsy
Using a rigorous QI-driven process across 4 member sites of a North American learning health network (CPRN), we demonstrated that we could increase screening for dystonia and that this was associated with increased clinical dystonia diagnosis, matching expected research-based rates. We propose that similar screening should take place across all sites caring for people with CP.
Authors
- Bhooma R. Aravamuthan (ORCID: https://orcid.org/0000-0003-0205-2149)
- Keerthana Chintalapati (ORCID: https://orcid.org/0009-0002-1135-1159)
- Linn Katus (ORCID: https://orcid.org/0000-0001-6083-1082)
- Desiree Roge (ORCID: https://orcid.org/0009-0008-8425-3799)
- Amy F. Bailes (ORCID: https://orcid.org/0000-0002-8555-9748)
- Paul Gross (ORCID: https://orcid.org/0000-0001-9833-169X)
- Rose Gelineau‐Morel (ORCID: https://orcid.org/0000-0002-7387-9082)
- Michael C. Kruer (ORCID: https://orcid.org/0000-0002-1373-7891)
- Emma Lott
- Deborah Grenard
- Esra Pehlivan (ORCID: https://orcid.org/0000-0002-9659-0601)
- Christie Becu
Institutions
- Cincinnati Children's Hospital Medical Center (US)
- United Cerebral Palsy (US)
- University of Washington (US)
- Washington University in St. Louis (US)
- Phoenix Children's Hospital (US)
- Research Network (United States) (US)
- Cerebral Palsy Research Network
- University of Missouri–Kansas City (US)
- Columbia University (US)
Publication Details
- Journal
- Neurology Clinical Practice
- Published
- 2025-04-17
- DOI
- https://doi.org/10.1212/cpj.0000000000200469
- Citations
- 1
- Primary Topic
- Cerebral Palsy and Movement Disorders
- Type
- article
- Field-Weighted Citation Impact
- 1.47