Health-related quality of life and economic impacts in adults with sickle cell disease with recurrent vaso-occlusive crises: findings from a prospective longitudinal real-world survey
Participants reported significant impairments to their HRQoL and financial constraints associated with SCD with recurrent VOCs, indicating humanistic and economic burden and unmet needs in this population.
Authors
- Jennifer Drahos (ORCID: https://orcid.org/0000-0002-8454-9863)
- Nanxin Li (ORCID: https://orcid.org/0009-0006-4412-0997)
- Ashley Valentine
- Adriana Boateng-Kuffour
- Farrukh Shah (ORCID: https://orcid.org/0000-0001-5975-1309)
- Zahra Pakbaz
- Antony P. Martin (ORCID: https://orcid.org/0000-0003-4383-6038)
- Melanie Calvert (ORCID: https://orcid.org/0000-0002-1856-837X)
- Anthony Mason
- Nick Ainsworth
Institutions
- NHS Blood and Transplant (GB)
- University of California, Irvine (US)
- Cellular Therapeutics (United Kingdom) (GB)
- NIHR Research Delivery Network (GB)
- NIHR Birmingham Biomedical Research Centre (GB)
- Vertex Pharmaceuticals (United States) (US)
- University of Birmingham (GB)
Publication Details
- Journal
- Quality of Life Research
- Published
- 2025-04-17
- DOI
- https://doi.org/10.1007/s11136-025-03963-6
- Citations
- 5
- Primary Topic
- Hemoglobinopathies and Related Disorders
- Type
- article
- Field-Weighted Citation Impact
- 8.13
Funders
- Vertex Pharmaceuticals