Pediatric Access to Electronic Health Information: Stories from Adolescents and Parents

Abstract: This symposium includes twelve personal narratives from parents and adolescents reflecting on their experiences access electronic health information (EHI) through online patient portals. Four commentaries on these narratives are also included, authored by experts and scholars in communication, adolescent medicine, critical care, informatics, ethics, and law. The goal of this symposium is to call attention to the varying experiences, needs, hopes, and frustrations of parents and adolescents as they navigate adolescent EHI and healthcare.