Navigating Adolescent Health Through a Portal

Abstract: This commentary discusses twelve pieces detailing patient and parent experiences using the electronic health record and portal system. Authored by a combination of adolescents and parents, the stories include views of individuals navigating both straightforward and very complex health journeys. Several common themes are identified and discussed in the context of portal development and the 21st Century Cures Act Final Rule. Authors routinely commented on the challenges of limited portal access once an adolescent turns twelve years of age. Adolescents and parents discussed the importance of continued portal access for care management and coordination, as well as medical decision-making. The commentary highlights the challenges and opportunities in providing equitable portal access for adolescents and their families.

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Publication Details

Journal
Narrative Inquiry in Bioethics
Published
2025-01-01
DOI
https://doi.org/10.1353/nib.2025.a957201
Primary Topic
Mobile Health and mHealth Applications
Type
article
Field-Weighted Citation Impact
0.00
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article

Navigating Adolescent Health Through a Portal

Jennifer L. Carlson
Narrative Inquiry in Bioethics
Mobile Health and mHealth Applications
article

Navigating Adolescent Health Through a Portal

Jennifer L. Carlson
article en

Abstract

Abstract: This commentary discusses twelve pieces detailing patient and parent experiences using the electronic health record and portal system. Authored by a combination of adolescents and parents, the stories include views of individuals navigating both straightforward and very complex health journeys. Several common themes are identified and discussed in the context of portal development and the 21st Century Cures Act Final Rule. Authors routinely commented on the challenges of limited portal access once an adolescent turns twelve years of age. Adolescents and parents discussed the importance of continued portal access for care management and coordination, as well as medical decision-making. The commentary highlights the challenges and opportunities in providing equitable portal access for adolescents and their families.

Narrative Inquiry in BioethicsVol. 15(1)
Palo Alto University (US)
Openalex Percentile: Top 87%
Mobile Health and mHealth Applications
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Navigating Adolescent Health Through a Portal — Jennifer L. Carlson · Narrative Inquiry in Bioethics (2025) | TGRS Research Map | TGRS